SPEECH APRAXIA UK

SPEECH APRAXIA UKSPEECH APRAXIA UKSPEECH APRAXIA UK
  • Introducing Us
  • Diagnosis
  • Therapy and treatments
  • Funding and support
  • Apraxia Resource Hub
  • More
    • Introducing Us
    • Diagnosis
    • Therapy and treatments
    • Funding and support
    • Apraxia Resource Hub

SPEECH APRAXIA UK

SPEECH APRAXIA UKSPEECH APRAXIA UKSPEECH APRAXIA UK
  • Introducing Us
  • Diagnosis
  • Therapy and treatments
  • Funding and support
  • Apraxia Resource Hub

Films on apraxia of speech

Lost for words (2024)

 Chris Kamara: Lost for Words - ITVX  Chris has been diagnosed with Primary Apraxia of Speech, which is a rare condition and his speech doesn't necessarily sound typical for those who have Apraxia of Speech. However, it raises awareness of the condition, and provides a really good insight into the impact that this acquired motor speech disorder can have on an individual's life, confidence and identity. It also touches on childhood apraxia of speech and a lack of funding for SLT services.  

My Beautiful Broken Brain – (2014)

This documentary film traces the emotional journey of Londoner Lotje Sodderland after she suffered a hemorrhagic stroke in 2011 at the age of 34, losing her ability to read, write, and speak coherently. The film covers the daily challenges that Lottje experienced with dysphasia and apraxia, as well as memory deficits, confusion, sensory perception changes, fatigue, and frustration; typical effects of stroke. My Beautiful Broken Brain - Official Trailer - Netflix Documentary [HD] - YouTube 

Organisations, apps and resources

Practical, evidence-based and personal support for adults with acquired or developmental apraxia of speech, families, and professionals.

  

🧠 What is Apraxia of Speech?

Overview and Definitions

 

  • Clinical information on speech sound disorders | RCSLT 
  • Royal College of Speech and Language Therapists UK professional body provide information and resources
  • NIDCD – Apraxia Overview
    A clear summary of causes, symptoms, and diagnosis from a trusted U.S.      government source.
  • ASHA – Apraxia of Speech in Adults
    Detailed clinical information and treatment strategies for adult      apraxia from the U.S. speech and hearing association.
  • Apraxia Kids (International)
    Though child-focused, this site explains apraxia clearly and provides      useful therapy ideas and AAC strategies for all ages.
  • SpeechBITE Database
    A searchable database of evidence-based interventions for      speech-language disorders, including apraxia.

  

💬 Accessing Speech and Language Therapy

UK Services

  • NHS SLT Services
    Access free therapy via your GP, hospital, or consultant. Ideal for      stroke rehab or neurological conditions.
  • ASLTIP – Private SLT Directory
    Find an independent therapist specialising in motor speech disorders      near you.
  • RCSLT – Public Info
    Professional body for SLTs offering public-facing info on therapy      access and apraxia.
  • Speech Pathology      Australia
    Australia's national SLT body with resources and public education on      apraxia.
  • IASLT – Irish Association of SLTs
    Ireland-specific SLT guidance and access information.

  

📚 Lived Experience & Personal Stories

  • Fighting for My      Voice – Jordan's Story
    A moving account of growing up with verbal apraxia, promoting awareness      and resilience.
  • Mikey’s Wish
    Campaign by a young person with apraxia to fund and improve access to      speech therapy.
  • Adult      Apraxia of Speech (Facebook Groups/Forums)
    Global peer-support communities for adults with acquired apraxia and      their families.

  

🔬 Treatment Approaches & Clinical Tools

  • ReST      – Rapid Syllable Transition Treatment
    Motor speech therapy approach adaptable from paediatrics to adults.
  • Tactus Therapy
    Evidence-based apps for practicing speech and language at home.
  • Dysphonia International
    Information on muscle tension dysphonia and related voice disorders.
  • STAMMA – Stammering Support
    Helpful for exploring co-occurring or differential diagnoses such as      stammering and cluttering.
  • National Autism Society
    Understanding autism, often co-occurring with verbal dyspraxia.

  

🧰 Assistive Technology & AAC

  • CALL Scotland AAC Resource Finder
    Searchable tool to explore communication devices or access aids.
  • ACE Centre
    AAC assessments, software, and resources.
  • Communication Matters
    National charity supporting AAC users via information, training, and      community events.
  • TechAbility
    Promotes assistive tech in education and beyond.
  • Smartbox Assistive Technology
    AAC devices and solutions tailored to individual needs.
  • AbilityNet
    Digital accessibility support and tech solutions for people with      communication impairments.

  

🧠 Recovery, Mental Health & Advocacy

  • Stroke Association
    Information, therapy referrals, and peer support for stroke survivors.
  • Headway – Brain Injury Support
    Practical and emotional support for brain injury survivors, including      those with acquired apraxia.
  • Mencap
    Support for people with learning disabilities and complex communication      needs.
  • Brain Injury Group
    Help with legal rights, rehab, and social integration after brain      injury.
  • Mind – Mental Health Support
    Help for managing anxiety, depression, and emotional adjustment.
  • NHS      Talking Therapies (IAPT)
    Free psychological therapy in the UK.

  

🛋 Occupational Therapy & Hearing Services

  • NHS OT Services | RCOT
    Help with sensory, coordination, and daily living tasks.
  • Action on Hearing Loss (RNID)
    Support for hearing loss impacting speech and communication.

  

🏫 Education, Employment & Training

  • Disability Rights UK
    Advice on rights, adjustments, and learning support.
  • Access      to Work Scheme
    Government funding for workplace support and tech.
  • National      Careers Service
    Career guidance and employment support with disability accommodations.
  • Disabled      Students Allowance (DSA)
    Financial support for university students with speech and language      needs.

  

👥 Peer Support & Everyday Communication Tools

  • Aphasia UK
    Support for those with speech and language difficulties and their      families.
  • Talking Mats
    Visual communication support tool.
  • Say Aphasia
    Group support and confidence-building resources.
  • NHS Your COVID Recovery
    Includes post-illness speech and cognitive fatigue guidance.
  • CLEAR Resources
    Practical tools for communication in everyday settings.

  

🎧 Media & Learning

  • "See      Me, Hear Me" Podcast
    Interviews with people living with apraxia, advocates, and SLTs.
  • YouTube      Channels
    Search for "Apraxia Kids", "Adventures in Speech   Pathology", or AAC tutorials for visual examples of techniques.

  

✨ Research & Emerging Practices

  • University-Based      Apraxia Research Registries
    Keep an eye on clinical research sites for opportunities to engage in    studies.
  • SpeechBITE      (also under "What is Apraxia")
    Evidence summaries to guide intervention planning.





Education and student placements

Presentation tips

Training to be a speech and language therapist with a speech difference

Handling student placements in work places

  • Use slides, visuals, or written notes alongside speech
     
  • Record answers or use AAC for assessments
     
  • Have a learning support plan that includes communication needs
     
  • Talk to disability support services about reasonable adjustments.


  • Organise pre-placement meeting before placements to educate and inform placement staff. 

  • Consider using an app like Present Pal  to help present slides Present Pal: Presentation Support App for DSA | Build Confidence 

Handling student placements in work places

Training to be a speech and language therapist with a speech difference

Handling student placements in work places

Organise pre-placement meetings before placements to educate and inform placement staff. If possible, have your lecturer and the placement staff present.


Send them a website link to allow them research apraxia of speech. www.speachapraxia.co.uk



Training to be a speech and language therapist with a speech difference

Training to be a speech and language therapist with a speech difference

Training to be a speech and language therapist with a speech difference

First, good for you! We need more people with speech differences in the profession!


Send the placements (and your university lecturers this document from the Royal College of Speech and Language Therapists.

 The content includes information for disabled students about what they can expect and how to access appropriate support and the responsibilities of HEIs and placement educators such as reasonable adjustments and the support they offer e.g. DSA, support summaries. 


 Input on guidance to support disabled SLT students | RCSLT 

Software which may help

Global tasks

Services for Adults

Global tasks

 See the big picture, hide the noise and focus on your priorities 

 Global Tasks 

Product Tester review

I used this when organising my placements. When there was a lot going on, this was where I kept it in one place

Mindview

Services for Adults

Global tasks

MindView is an innovative and intuitive mind mapping software tool 

MatchWare Account Login 

IProduct Tester review

 I used this to revise for exams. It enabled me to connect everything and together and form a mental map of who information related,

Services for Adults

Services for Adults

Services for Adults

Read&Write is a literacy support tool that offers help with everyday tasks like reading text out loud, understanding unfamiliar words, researching assignments, and proofing written work. 

Read&Write for Windows | Texthelp 

.Product Tester review

This was handy when I was tired, for reading out text but it is difficult to set up for photocopied documents.

Genio Notes

Genio Notes

Services for Adults

Genio Notes audio note taking app boosts your ability to retain key information from class. Visit here to sign up or sign into Genio Notes and improve the way you learn. 

 Sign in - Glean 

Product Tester review

Probably my favourite. I downloaded the lecture Powerpoint, pressed record, and could add notes as I went. Everything from the lecture in one place with low effort.

Blog

Genio Notes

Blog

  Summarize any paper, article or textbook. You can summarize videos too! Scholarcy converts long complex texts into interactive summary flashcards, which highlight key information. 

Scholarcy - Article Summarizer and Flashcard Generator  

Product Tester review

Another great application. It enabled me to download research and it would summarise it and produce flashcards.This really helped me study.

Communication resources

Augmentative and Alternative Communication (AAC)

Augmentative and Alternative Communication (AAC) can be a powerful support for people with apraxia of speech. While AAC doesn't "cure" apraxia, it offers ways to express thoughts when speaking is difficult. Tools can range from low-tech options like picture boards and notebooks to high-tech devices and apps with text-to-speech features. AAC is most effective when tailored to each person’s communication needs, preferences, and daily life. These needs may change over time, so flexibility is key. AAC can enhance independence, reduce frustration, and improve participation in conversations. A speech and language therapist can help identify the right AAC tools and strategies. .


Try the ACE centre for more information  Ace Centre | Charity specialising in AAC & Assistive Technology 

Words are, of course, the most powerful drug used by mankind.


Rudyard Kipling

Handling resentations

Presenting tips



  • Keep slides simple and visual: Let the visuals do some of the talking for you. Use large, clear fonts and supportive images to reduce how much you need to say.
  • Use speaker notes or cue cards: These can anchor you and help you avoid filler words or long pauses.
  • Practice with a script: Record yourself and listen back—not to critique, but to get used to your pacing and tone.
  • Pause with purpose: Silence isn’t bad. A short pause can make your message land better and give you time to breathe and refocus.
  • Do a short pre-presentation on a familiar topic.
  • Get extra time (explain how it helps to enable this)

Organisations

 

  • Toastmasters International – A global nonprofit that helps people improve public speaking and leadership skills through local clubs. Toastmasters International -Home 
  • Speakers Trust (UK) – Offers workshops and resources to help young people and community groups develop speaking confidence.  Speakers Trust - Speak and be heard. 
  • YouTube Channels like TED-Ed or Speak with Impact – Great for bite-sized tips and examples of effective delivery. Lessons Worth Sharing | TED-Ed 

Undertaking SLT course with CAS

Don't be put off applying for training to be a speech and language therapist by your apraxia.

 Read my journey


The confidence to re-apply after being knocked back 25 years ago


Training to be an SLT... with apraxia of speech—the journey 

Work Stratagies

Getting the help you need to succeed

 

Apraxia of speech is not a cognitive disability but might impact workplace communication

Asking for Patience and Extra Time

 

Request colleagues give you a little extra time to speak

Explain you may need to repeat myself or clarify difficult words

Encourage team members to ask you to spell out or rephrase words if unclear.

Using Alternative Communication Methods

 

Utilizing chat features in Zoom/Teams to contribute during meetings or ask to meet in person if easier

Email or text over phone calls for clear record and reduced pressure

Submit written reports or responses instead of verbal presentations.

Coordinating Team Participation in Meetings

 

Arrange for colleagues to introduce you when new stakeholders are present

Share meeting materials in advance so you have time to prepare written input

Let participants know how you may respond after meetings for clarity. Indicate you wish to speak with a hand gesture or a marker, so that the team can allow you time to talk.

Self-Advocacy and Requesting Accommodations

 

Openly discussing your apraxia and needs with supervisors. Make them aware of disability legislation (see resource hub  Apraxia Resource Hub 

Ask for flexibility in task or deadline expectations (e.g., extra response time)

Suggest reasonable, low-cost accommodations that benefit communication

Resources and Ongoing Support

 

Access workplace or community resources for people with speech disabilities. Apraxia Resource Hub 

Join employee groups, university of college disability support groups or online communities for peer mentorship

Stay informed about new assistive technologies and workplace inclusion programs

Research on APraxia of speech

Remember to contact us for more information

 Research on apraxia of speech.pdf 

 

  • Diagnostic Criteria & Markers
     
  • Assessment
     
  • Treatment and Intervention (Childhood Apraxia of Speech)
     
  • Treatment and Intervention (Adult Apraxia of Speech)
     
  • Nonspeech Oral Motor Exercises (NSOMEs)
     
  • Research & Methodological Tools
     
  • Professional Practice & Training

Survey of SLT's/SLT students knowledge/opinions of CAS

Introduction

These are the results  of a survey of 38 Speech and Language Therapists and student SLTs in the North of England to find out their knowledge and attitudes towards Childhood Apraxia of Speech (Pepper, 2025)

Strong Understanding of CAS Speech Features

 Most SLTs and SLT students demonstrated a strong understanding of the core speech characteristics of Childhood Apraxia of Speech (CAS). All respondents identified consonant and vowel difficulties, reflecting excellent awareness of the speech motor planning issues at the heart of CAS. Many also recognised reduced intelligibility (71.4%), disrupted prosody (68.6%), and difficulty with fast speech (65.7%)—hallmark features of the disorder. 

Confusion with Broader Developmental or Cognitive Conditions

Some SLTs and SLT students selected features not typically associated with CAS, such as limb movement, fine motor skills, or memory. These are more relevant to broader developmental conditions like cerebral palsy or developmental coordination disorder. This highlights a common confusion; misunderstanding CAS as a general cognitive or neurological condition, rather than a specific speech motor planning disorder. 

Mis-attribution of Language and Literacy Features

 A number of SLTs and SLT students attributed language and literacy issues to CAS, including reading aloud (85.7%), spoken grammar (62.9%), and phonological awareness (48.6%). While these are not part of the diagnostic criteria, such difficulties can arise secondarily due to limited speech experience. This points to a need for clearer understanding of primary versus secondary features of CAS. 

Sociocultural and Outcome-Based Misunderstandings

Some SLTs and SLT students identified adverse long-term outcomes, like lower job opportunities (62.9%). Some note social-emotional skills (28.6%) as a feature of CAS. This suggests awareness of the real-world implications, but also some confusion between the condition’s causes and its consequences. 

Uncertainty Around Non-Speech Oral-Motor Features

 Moderate numbers of SLTs and SLT students selected features such as difficulty humming (57.1%) or moving the tongue voluntarily (65.7%). While these can be observed in some individuals, they are not core diagnostic features of CAS. This indicates a need to better distinguish between speech-related motor planning deficits and more general oral-motor difficulties. 

What Was Most Impactful for SLTs and SLT Students

 Many SLTs and SLT students found it most impactful to realise that support for people with CAS must extend beyond childhood. They described a shift away from “fix-it” thinking toward a view of therapy as a lifelong, individualised process. There was strong advocacy for inclusive, functional, and co-produced approaches, as well as access to evidence-based methods like DTTC. 

What Needs to Change in SLT Practice

  SLTs and SLT students called for changes in practice to support individuals with CAS across the lifespan. This includes more services for adolescents and adults, and a shift toward inclusive, person-centred therapy. Many advocated for greater time, empathy, and flexibility in intervention, alongside stronger training in evidence-based approaches and co-production with individuals who have CAS. 

Greatest Challenges for People with CAS

According to SLTs and SLT students, the biggest challenges faced by people with CAS are social and emotional. These include being misunderstood, underestimated, or spoken for—despite having intact understanding and cognition. The mental effort required to speak, coupled with fear of judgement, was also highlighted. The root challenge is often others’ perceptions, rather than the speech disorder itself. 

Common Misconceptions About CAS

 Several SLTs and SLT students reported that the survey challenged their assumptions about CAS. Many had thought it was limited to childhood, or misunderstood the range of difficulties it can affect. There was a growing realisation that CAS is a complex and often lifelong condition, reinforcing the need for ongoing training, awareness, and support in clinical practice. 

Childhood apraxia knowledge in SLTs

What do SLTs perceive as their knowledge in Childhood Apraxia of Speech treatment? 

   

A literature review examined the research question 'Do SLTs perceive they have clinical knowledge in Childhood Apraxia of Speech treatment?' and found that speech and language therapists (SLTs) generally felt they lacked sufficient knowledge and training in Childhood Apraxia of Speech (CAS) treatment, with many relying on continuing education courses and conferences to gain knowledge.

https://acrobat.adobe.com/id/urn:aaid:sc:EU:cc1978fa-9f6e-4fd1-8969-461cd81fb124


Training to be a speech and language therapist/pathologist with a speech difference

The Royal College of Speech and Language Therapists takes an 'anti-ableist stance towards supporting disabled people on pre-registration SLT courses, i.e. an anti-discriminative/prejudiced view towards disability. It intends to support HEIs and PEs in understanding the needs of and promote the equality of access for disabled students to undertake a pre-registration SLT course '.  The disabled student experience during training  | RCSLT 


 Become a speech and language therapist | RCSLT 

Apraxia of speech

Communication tools

 Speech can be supported with apps:

  • Text-to-Speech Apps (e.g., Proloquo4Text, Predictable)
     
  • Symbol-supported communication (for quick, familiar phrases)
     
  • Voice banking or custom message storage
     
  • Scripts and communication cards for specific settings (e.g., “I need extra time to speak”)

meet other adults with apraxia of speech

All the adults here have experience of living with apraxia of speech. Watch their videos and hear their insights. If you want yours to be added, just let me know

Add your experience

Adults with childhood apraxia of speech

Mikey Akers is the founder of Mikey’s Wish Foundation, a registered charity that raises awareness of and supports people with speech, language and communication needs with an interest in Childhood Apraxia of Speech. Mikey was diagnosed with CAS when he was just 2 years old and has spent the last 10 years actively raising awareness of the diagnosis. He has travelled to America to speak at conferences, is an ‘Expert by Experience’ at Birmingham City University, travels England giving talks at conferences and schools. He has appeared in the documentary, Chris Kamara: Lost for Words. Mikey is working with a number of MPs to secure more funding for speech and language services after his petition was debated in Parliament earlier this year 

Growing up with childhood apraxia of Speech

Jaron

Jaron

Jaron

 Living with Speech Apraxia 

Jaron Talks about growing up with apraxia and living with it today.

Isela

Jaron

Jaron

 Living With Apraxia of Speech | BeautywithIsela 

Isela describes what apraxia of speech is. She talks about how her childhood apraxia of speech continues to affect her as an adult.

Isela

Jaron

 My Journey with Apraxia of Speech 

 Speech has always been a source of both frustration and fascination for him. Diagnosed with childhood apraxia of speech, He spent almost a decade in therapy learning how to communicate.  His channel shares his experiences growing up with a speech disorder, along with strategies, insights, and advice for anyone navigating similar challenges. He also dives into the science behind speech and apraxia in a way that’s clear and approachable 

 www.youtube.com/@mac-kayful 

I

Jordan

 Growing Up with Verbal Apraxia (CAS) - Q&A 

Jordan has a suite of videos and his own website, 'Flighting for my voice,' discussing the issues around apraxia of speech.

Carly

Carly

Joanne Bendel  “If you are growing up with apraxia, or you grew up with apraxia, I want you to know that you are not alone. You see, I have it too, which means that we’ve probably faced similar challenges in life. Because we have a hard time putting sounds together, it makes communicating difficult. As you’re aware, not being well-understood means that we might have a few more obstacles in our path than other people do. But that’s what makes us unique.  Woman with verbal apraxia: 'Don't ever give up' 

Carly

Carly

 Speechless Intro 

Carly Fleischmann is an amazing person who doesn’t let nonverbal autism and apraxia of speech stop her. She uses technology to share her thoughts and ideas. Carly co-wrote the book “Carly’s Voice: Breaking Through Autism” and has her own YouTube show. Her story inspires neurodivergent kids all around the world.

Ronda Rousey UFC fighter

Ronda Rousey had a hard time communicating as a child

 

For the first six years of Ronda Rouey’s life, she struggled to form intelligible sentences. While at the time she was not diagnosed with Childhood Apraxia of Speech, as the condition was extremely rare and not well understood, Rousey did take speech therapy lessons as a child.

She told ABC News about it in 2015, saying, “At first I was tested for deafness. They thought maybe my pronunciation was off because I was hearing things differently. But it was really I had all these words perfectly arranged in my head, it’s just when they tried to come out of my mouth they sounded different. It was kind of like there was a divide between my brain and my mouth."

Ronda Rousey and her family believe that it may have been the fact that Rouey was born with her umbilical cord wrapped around her neck that caused the disorder. It’s ironic that someone who became known for choking out opponents was almost choked out in birth. It’s almost as if it was fate. Ronda was born a fighter, so she became one professionally as well.(Thesportstar.com, 2025)  Ronda Rousey wants Becky Lynch at WrestleMania: Raw, Feb. 25, 2019 

Adults with Acquired Apraxia of Speech

Gina

Gina was diagnosed with it after a cerebral vascular accident (small stroke) in October of 2015. She wanted to find others who have apraxia but really, couldn't find any good examples of adults like her.  She decided she couldn't be the only one out there, so she posted videos of me and my progress. Click on the link to watch them.

 Adult apraxia of speech 

Donna

Deonna Keiser is an artist who is living with the impacts of speech aphasia and apraxia as a result of a stroke. While Deonna is able to understand all spoken language, she sometimes has trouble formulating the words to speak. With the help of her dear friend Lisa Naser, and through her art, Deonna is able to communicate her day-to-day and emotional experiences.  When Art Speaks: Living after Stroke with Speech Aphasia and Apraxia - YouTube 

Primary Progressive Apraxia-Chris Kamara

Chris has primary progressive verbal apraxia

Chris Kamara Bravely Opens Up On His Battle With Apraxia | This Morning - YouTube 

He’s known for his famous catchphrase ‘Unbelievable Jeff!’ during his football commentary each weekend, but in 2020 Chris Kamara found himself struggling with his speech. He was later diagnosed with a rare condition called Apraxia of Speech (AOS) which is the subject of his new documentary ‘Lost For Words’. Chris joins us today alongside his close friend Ben Shephard to share his story. . Watch his film  Chris Kamara: Lost for Words - ITVX 

Chris Kamara

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