Chris Kamara: Lost for Words - ITVX Chris has been diagnosed with Primary Apraxia of Speech, which is a rare condition and his speech doesn't necessarily sound typical for those who have Apraxia of Speech. However, it raises awareness of the condition, and provides a really good insight into the impact that this acquired motor speech disorder can have on an individual's life, confidence and identity. It also touches on childhood apraxia of speech and a lack of funding for SLT services.
This documentary film traces the emotional journey of Londoner Lotje Sodderland after she suffered a hemorrhagic stroke in 2011 at the age of 34, losing her ability to read, write, and speak coherently. The film covers the daily challenges that Lottje experienced with dysphasia and apraxia, as well as memory deficits, confusion, sensory perception changes, fatigue, and frustration; typical effects of stroke. My Beautiful Broken Brain - Official Trailer - Netflix Documentary [HD] - YouTube
Practical, evidence-based and personal support for adults with acquired or developmental apraxia of speech, families, and professionals.
🧠 What is Apraxia of Speech?
Overview and Definitions
💬 Accessing Speech and Language Therapy
UK Services
📚 Lived Experience & Personal Stories
🔬 Treatment Approaches & Clinical Tools
🧰 Assistive Technology & AAC
🧠 Recovery, Mental Health & Advocacy
🛋 Occupational Therapy & Hearing Services
🏫 Education, Employment & Training
👥 Peer Support & Everyday Communication Tools
🎧 Media & Learning
✨ Research & Emerging Practices
Organise pre-placement meetings before placements to educate and inform placement staff. If possible, have your lecturer and the placement staff present.
Send them a website link to allow them research apraxia of speech. www.speachapraxia.co.uk
First, good for you! We need more people with speech differences in the profession!
Send the placements (and your university lecturers this document from the Royal College of Speech and Language Therapists.
The content includes information for disabled students about what they can expect and how to access appropriate support and the responsibilities of HEIs and placement educators such as reasonable adjustments and the support they offer e.g. DSA, support summaries.
See the big picture, hide the noise and focus on your priorities
Product Tester review
I used this when organising my placements. When there was a lot going on, this was where I kept it in one place
MindView is an innovative and intuitive mind mapping software tool
IProduct Tester review
I used this to revise for exams. It enabled me to connect everything and together and form a mental map of who information related,
Read&Write is a literacy support tool that offers help with everyday tasks like reading text out loud, understanding unfamiliar words, researching assignments, and proofing written work.
Read&Write for Windows | Texthelp
.Product Tester review
This was handy when I was tired, for reading out text but it is difficult to set up for photocopied documents.
Genio Notes audio note taking app boosts your ability to retain key information from class. Visit here to sign up or sign into Genio Notes and improve the way you learn.
Product Tester review
Probably my favourite. I downloaded the lecture Powerpoint, pressed record, and could add notes as I went. Everything from the lecture in one place with low effort.
Summarize any paper, article or textbook. You can summarize videos too! Scholarcy converts long complex texts into interactive summary flashcards, which highlight key information.
Scholarcy - Article Summarizer and Flashcard Generator
Product Tester review
Another great application. It enabled me to download research and it would summarise it and produce flashcards.This really helped me study.
Augmentative and Alternative Communication (AAC) can be a powerful support for people with apraxia of speech. While AAC doesn't "cure" apraxia, it offers ways to express thoughts when speaking is difficult. Tools can range from low-tech options like picture boards and notebooks to high-tech devices and apps with text-to-speech features. AAC is most effective when tailored to each person’s communication needs, preferences, and daily life. These needs may change over time, so flexibility is key. AAC can enhance independence, reduce frustration, and improve participation in conversations. A speech and language therapist can help identify the right AAC tools and strategies. .
Try the ACE centre for more information Ace Centre | Charity specialising in AAC & Assistive Technology
Rudyard Kipling
Read my journey
The confidence to re-apply after being knocked back 25 years ago
Apraxia of speech is not a cognitive disability but might impact workplace communication
Request colleagues give you a little extra time to speak
Explain you may need to repeat myself or clarify difficult words
Encourage team members to ask you to spell out or rephrase words if unclear.
Utilizing chat features in Zoom/Teams to contribute during meetings or ask to meet in person if easier
Email or text over phone calls for clear record and reduced pressure
Submit written reports or responses instead of verbal presentations.
Arrange for colleagues to introduce you when new stakeholders are present
Share meeting materials in advance so you have time to prepare written input
Let participants know how you may respond after meetings for clarity. Indicate you wish to speak with a hand gesture or a marker, so that the team can allow you time to talk.
Openly discussing your apraxia and needs with supervisors. Make them aware of disability legislation (see resource hub Apraxia Resource Hub
Ask for flexibility in task or deadline expectations (e.g., extra response time)
Suggest reasonable, low-cost accommodations that benefit communication
Access workplace or community resources for people with speech disabilities. Apraxia Resource Hub
Join employee groups, university of college disability support groups or online communities for peer mentorship
Stay informed about new assistive technologies and workplace inclusion programs
Research on apraxia of speech.pdf
These are the results of a survey of 38 Speech and Language Therapists and student SLTs in the North of England to find out their knowledge and attitudes towards Childhood Apraxia of Speech (Pepper, 2025)
Most SLTs and SLT students demonstrated a strong understanding of the core speech characteristics of Childhood Apraxia of Speech (CAS). All respondents identified consonant and vowel difficulties, reflecting excellent awareness of the speech motor planning issues at the heart of CAS. Many also recognised reduced intelligibility (71.4%), disrupted prosody (68.6%), and difficulty with fast speech (65.7%)—hallmark features of the disorder.
Some SLTs and SLT students selected features not typically associated with CAS, such as limb movement, fine motor skills, or memory. These are more relevant to broader developmental conditions like cerebral palsy or developmental coordination disorder. This highlights a common confusion; misunderstanding CAS as a general cognitive or neurological condition, rather than a specific speech motor planning disorder.
A number of SLTs and SLT students attributed language and literacy issues to CAS, including reading aloud (85.7%), spoken grammar (62.9%), and phonological awareness (48.6%). While these are not part of the diagnostic criteria, such difficulties can arise secondarily due to limited speech experience. This points to a need for clearer understanding of primary versus secondary features of CAS.
Some SLTs and SLT students identified adverse long-term outcomes, like lower job opportunities (62.9%). Some note social-emotional skills (28.6%) as a feature of CAS. This suggests awareness of the real-world implications, but also some confusion between the condition’s causes and its consequences.
Moderate numbers of SLTs and SLT students selected features such as difficulty humming (57.1%) or moving the tongue voluntarily (65.7%). While these can be observed in some individuals, they are not core diagnostic features of CAS. This indicates a need to better distinguish between speech-related motor planning deficits and more general oral-motor difficulties.
Many SLTs and SLT students found it most impactful to realise that support for people with CAS must extend beyond childhood. They described a shift away from “fix-it” thinking toward a view of therapy as a lifelong, individualised process. There was strong advocacy for inclusive, functional, and co-produced approaches, as well as access to evidence-based methods like DTTC.
SLTs and SLT students called for changes in practice to support individuals with CAS across the lifespan. This includes more services for adolescents and adults, and a shift toward inclusive, person-centred therapy. Many advocated for greater time, empathy, and flexibility in intervention, alongside stronger training in evidence-based approaches and co-production with individuals who have CAS.
According to SLTs and SLT students, the biggest challenges faced by people with CAS are social and emotional. These include being misunderstood, underestimated, or spoken for—despite having intact understanding and cognition. The mental effort required to speak, coupled with fear of judgement, was also highlighted. The root challenge is often others’ perceptions, rather than the speech disorder itself.
Several SLTs and SLT students reported that the survey challenged their assumptions about CAS. Many had thought it was limited to childhood, or misunderstood the range of difficulties it can affect. There was a growing realisation that CAS is a complex and often lifelong condition, reinforcing the need for ongoing training, awareness, and support in clinical practice.
What do SLTs perceive as their knowledge in Childhood Apraxia of Speech treatment?
A literature review examined the research question 'Do SLTs perceive they have clinical knowledge in Childhood Apraxia of Speech treatment?' and found that speech and language therapists (SLTs) generally felt they lacked sufficient knowledge and training in Childhood Apraxia of Speech (CAS) treatment, with many relying on continuing education courses and conferences to gain knowledge.
https://acrobat.adobe.com/id/urn:aaid:sc:EU:cc1978fa-9f6e-4fd1-8969-461cd81fb124
The Royal College of Speech and Language Therapists takes an 'anti-ableist stance towards supporting disabled people on pre-registration SLT courses, i.e. an anti-discriminative/prejudiced view towards disability. It intends to support HEIs and PEs in understanding the needs of and promote the equality of access for disabled students to undertake a pre-registration SLT course '. The disabled student experience during training | RCSLT
Speech can be supported with apps:
All the adults here have experience of living with apraxia of speech. Watch their videos and hear their insights. If you want yours to be added, just let me know
Mikey Akers is the founder of Mikey’s Wish Foundation, a registered charity that raises awareness of and supports people with speech, language and communication needs with an interest in Childhood Apraxia of Speech. Mikey was diagnosed with CAS when he was just 2 years old and has spent the last 10 years actively raising awareness of the diagnosis. He has travelled to America to speak at conferences, is an ‘Expert by Experience’ at Birmingham City University, travels England giving talks at conferences and schools. He has appeared in the documentary, Chris Kamara: Lost for Words. Mikey is working with a number of MPs to secure more funding for speech and language services after his petition was debated in Parliament earlier this year
Jaron Talks about growing up with apraxia and living with it today.
Living With Apraxia of Speech | BeautywithIsela
Isela describes what apraxia of speech is. She talks about how her childhood apraxia of speech continues to affect her as an adult.
My Journey with Apraxia of Speech
Speech has always been a source of both frustration and fascination for him. Diagnosed with childhood apraxia of speech, He spent almost a decade in therapy learning how to communicate. His channel shares his experiences growing up with a speech disorder, along with strategies, insights, and advice for anyone navigating similar challenges. He also dives into the science behind speech and apraxia in a way that’s clear and approachable
I
Growing Up with Verbal Apraxia (CAS) - Q&A
Jordan has a suite of videos and his own website, 'Flighting for my voice,' discussing the issues around apraxia of speech.
Joanne Bendel “If you are growing up with apraxia, or you grew up with apraxia, I want you to know that you are not alone. You see, I have it too, which means that we’ve probably faced similar challenges in life. Because we have a hard time putting sounds together, it makes communicating difficult. As you’re aware, not being well-understood means that we might have a few more obstacles in our path than other people do. But that’s what makes us unique. Woman with verbal apraxia: 'Don't ever give up'
Carly Fleischmann is an amazing person who doesn’t let nonverbal autism and apraxia of speech stop her. She uses technology to share her thoughts and ideas. Carly co-wrote the book “Carly’s Voice: Breaking Through Autism” and has her own YouTube show. Her story inspires neurodivergent kids all around the world.
For the first six years of Ronda Rouey’s life, she struggled to form intelligible sentences. While at the time she was not diagnosed with Childhood Apraxia of Speech, as the condition was extremely rare and not well understood, Rousey did take speech therapy lessons as a child.
She told ABC News about it in 2015, saying, “At first I was tested for deafness. They thought maybe my pronunciation was off because I was hearing things differently. But it was really I had all these words perfectly arranged in my head, it’s just when they tried to come out of my mouth they sounded different. It was kind of like there was a divide between my brain and my mouth."
Ronda Rousey and her family believe that it may have been the fact that Rouey was born with her umbilical cord wrapped around her neck that caused the disorder. It’s ironic that someone who became known for choking out opponents was almost choked out in birth. It’s almost as if it was fate. Ronda was born a fighter, so she became one professionally as well.(Thesportstar.com, 2025) Ronda Rousey wants Becky Lynch at WrestleMania: Raw, Feb. 25, 2019
Gina was diagnosed with it after a cerebral vascular accident (small stroke) in October of 2015. She wanted to find others who have apraxia but really, couldn't find any good examples of adults like her. She decided she couldn't be the only one out there, so she posted videos of me and my progress. Click on the link to watch them.
Deonna Keiser is an artist who is living with the impacts of speech aphasia and apraxia as a result of a stroke. While Deonna is able to understand all spoken language, she sometimes has trouble formulating the words to speak. With the help of her dear friend Lisa Naser, and through her art, Deonna is able to communicate her day-to-day and emotional experiences. When Art Speaks: Living after Stroke with Speech Aphasia and Apraxia - YouTube
Chris Kamara Bravely Opens Up On His Battle With Apraxia | This Morning - YouTube
He’s known for his famous catchphrase ‘Unbelievable Jeff!’ during his football commentary each weekend, but in 2020 Chris Kamara found himself struggling with his speech. He was later diagnosed with a rare condition called Apraxia of Speech (AOS) which is the subject of his new documentary ‘Lost For Words’. Chris joins us today alongside his close friend Ben Shephard to share his story. . Watch his film Chris Kamara: Lost for Words - ITVX
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