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  • CAS
    • Diagnosis of CAS
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  • AOS
    • AOS PPAOS Therapy
    • Acquired AOS Diagnosis
    • Lived experience AOS
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    • PPAOS Diagnosis
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  • More
    • About
    • What we do
      • Events
      • Membership
      • Learning Platform
      • Latest news
      • Meet the team
    • CAS
      • Diagnosis of CAS
      • CAS Assessment
      • Reading, literacy and CAS
      • Lived Experience CAS
      • CAS Therapy
      • Genetics and CAS
    • AOS
      • AOS PPAOS Therapy
      • Acquired AOS Diagnosis
      • Lived experience AOS
    • PPAOS
      • PPAOS Diagnosis
      • Lived experience PPAOS
    • Other conditions
  • About
  • What we do
    • Events
    • Membership
    • Learning Platform
    • Latest news
    • Meet the team
  • CAS
    • Diagnosis of CAS
    • CAS Assessment
    • Reading, literacy and CAS
    • Lived Experience CAS
    • CAS Therapy
    • Genetics and CAS
  • AOS
    • AOS PPAOS Therapy
    • Acquired AOS Diagnosis
    • Lived experience AOS
  • PPAOS
    • PPAOS Diagnosis
    • Lived experience PPAOS
  • Other conditions
Speech Apraxia UK

Giving a voice to individuals with apraxia of speech

Giving a voice to individuals with apraxia of speechGiving a voice to individuals with apraxia of speechGiving a voice to individuals with apraxia of speech
What is speech apraxiaChildhood apraxia of speechResources for Childhood Apraxia of SpeechACQUIRED APRAXIA OF SPEECH (AOS)Primary Progessive Apraxia of speechMeet others with speech apraxia

What Is Apraxia of Speech?

Sub-types of oral/verbal /speech apraxia

 Non-Verbal Oral Apraxia: Often referred to as oral apraxia, this condition specifically affects the ability to perform non-speech movements with the mouth, such as blowing, licking, or chewing. Individuals may have difficulty executing these movements on command, even though they can perform them automatically in other contexts 

 What is 

 Non-Verbal Oral Apraxia: Often referred to as oral apraxia, this condition specifically affects the ability to perform non-speech movements with the mouth, such as blowing, licking, or chewing. Individuals may have difficulty executing these movements on command, even though they can perform them automatically in other contexts 

 What is the relationship between oral and verbal dyspraxia? | Dyspraxia Foundation 


Childhood Apraxia of Speech- developmental during childhood or from birth.


Aquired Apraxia of Speech- Disorder that happens after a stroke/neurological incidence. Often found later in life. Normally found alongside aphasia.


Primary Progressive Apraxia of Speech  (PPAOS )is a progressive motor speech disorder in which the brain gradually loses the ability to plan and program the movements required for speech. Unlike stroke-related apraxia, which occurs suddenly, PPAOS develops slowly, initially causing subtle speech difficulties that worsen over time. Individuals often know the words they want to say but struggle to articulate them correctly, resulting in distorted or halting speech 


You can have more then one type





How to use CAS screener

Recording and analysing speech +Phoemic inventories

https://www.seeingspeech.ac.uk/ipa-charts/?chart=3


These resources include video and audio recordings of individual sound segments produced by a male and a female speaker.


https://teaching.ncl.ac.uk/ipa/consonants-pulmonic.html


A very useful website that allows you to type in phonetic symbols.

https://ipa.typeit.org/


IPA Online from Newcastle 

https://www.seeingspeech.ac.uk/ipa-charts/?chart=3


These resources include video and audio recordings of individual sound segments produced by a male and a female speaker.


https://teaching.ncl.ac.uk/ipa/consonants-pulmonic.html


A very useful website that allows you to type in phonetic symbols.

https://ipa.typeit.org/


IPA Online from Newcastle University, UK


 Phonemic Inventories and Cultural and Linguistic Information (ASHA, 2026)


Phonemic Inventories Across Languages


Amharic

  • Amharic Phonemic Inventory
  • Predicted Influences of Amharic on Spoken English: Clinical Implications [PDF]
  • Amharic (Ethiopia) (MABS Lab at University of St. Augustine)

Arabic

  • Arabic Phonemic Inventory [PDF] 
  • Arabic (MABS Lab at University of St. Augustine)
  • Refugees from Iraq [PDF]

Bosnian

  • Bosnian (MustGo Travel)

Burmese

  • Burmese Phonemic Inventory
  • Refugees from Burma [PDF]
  • Burmese (Myanmar) (MABS Lab at University of St. Augustine)

Chinese

  • Cantonese Phonemic Inventory [PDF]
  • Cantonese (Hong Kong) (MABS Lab at University of St. Augustine)
  • Mandarin Phonemic Inventory [PDF]
  • Mandarin Linguistic Features
  • Mandarin vs. English Consonants
  • Mandarin (China and Taiwan) (MABS Lab at University of St. Augustine)

English 

  • African American English: Nature, Origin and Implications for Clinicians [PDF]
  • African American Vernacular English (AAVE) (MABS Lab at University of St. Augustine)
  • Chicano English (MABS Lab at University of St. Augustine)
  • General American English Phonemic Inventory [PDF]

Haitian Creole 

  • Haitian Creole (MABS Lab at University of St. Augustine)
  • Haitian Creole (MustGo)

Hebrew

  • Hebrew (MustGo)
  • Hebrew Phonetic Inventory

Hindi/Urdu 

  • Hindi (MABS Lab at University of St. Augustine)
  • Urdu Linguistic Features
  • Hindi-Urdu vs. English Consonants

Hmong

  • Phonetic Inventory of the Mong Leng [PDF]
  • Hmong (MABS Lab at University of St. Augustine)
  • ​Information about the Hmong Language (Asian Pacific Islander Speech-Language-Hearing Caucus)
  • Hmong Speech and Language Development (Bilinguistics)

Japanese

  • Japanese (MABS Lab at University of St. Augustine)

Korean

  • Korean Phonemic Inventory [PDF]
  • Korean (MABS Lab at University of St. Augustine)

Navajo

  • Navajo Sound Profile (University of New Mexico)
  • Navajo (MustGo)

Pashto and Persian

  • Afghan Backgrounder
  • Pashto (Afghanistan) (MABS Lab at University of St. Augustine)
  • Farsi/Persian (MABS Lab at University of St. Augustine)
  • Dari (Afghanistan) (MABS Lab at University of St. Augustine)

Polish

  • Polish Linguistic Features
  • Polish vs. English Consonants
  • Polish (MABS Lab at University of St. Augustine)

Portuguese

  • Portuguese (MustGo)
  • Portuguese (Speech Accent Archive)
  • Portuguese Speech and Language Development (Bilinguistics)

Russian

  • Russian and English Speech Sounds [PDF]
  • Russian (MABS Lab at University of St. Augustine)

Spanish

  • Spanish Phonemic Inventory [PDF]
  • The Cubans [PDF, 7.1MB]
  • Cuban Spanish (MABS Lab at University of St. Augustine)
  • Latin America Spanish ("Standard") (MABS Lab at University of St. Augustine)
  • Puerto Rican Spanish (MABS Lab at University of St. Augustine)
  • Spanish Linguistic Features
  • Spanish vs. English Consonants
  • Spanish (Mexican) (MABS Lab at University of St. Augustine)

Somali

  • Somali (MABS Lab at University of St. Augustine)

Tagalog

  • Filipino – Tagalog Speech and Language Development (Bilinguistics)
  • Tagalog (Filipino) (MABS Lab at University of St. Augustine)
  • Tagalog (MustGo)

Ukrainian

  • Ukrainian (MustGo)
  • Ukrainian Speech and Language Development (Bilinguistics)

Vietnamese

  • Vietnamese Phonemic Inventory [PDF]
  • Vietnamese (MABS Lab at University of St. Augustine)

Yiddish

  • Yiddish (MustGo)
  • Yiddish Phonetic Inventory

Refugee Profiles/Information USA

  • About Refugee Populations
  • Refugee Populations in Schools


STAR Speech Therapy Animation and Imaging Resource

Supporting and Understanding Speech Sound Disorder (SuSSD)


Acoustic voice markers  like vocal jitter and shimmer could help identify Childhood Apraxia of Speech. Aerodynamic data? Not so much.

Measuring Speech Intelligibility in Children With Motor Speech Disorders

 https://doi.org/10.1044/2020_PERSP-19-00110 


Age of Acquisition of English Consonants (Crowe & McLeod 2020) [PDF]



Different from Other Speech and language Disorders

Different from Other Speech and language Disorders

Unlike aphasia (language difficulty) or dysarthria (muscle weakness affecting speech), apraxia specifically impacts the brain's ability to coordinate the complex movements required for accurate speech production. Picture is from ASHA website


 Articulation disorders

Articulation disorders are due to difficulty making the correct movements fo

Unlike aphasia (language difficulty) or dysarthria (muscle weakness affecting speech), apraxia specifically impacts the brain's ability to coordinate the complex movements required for accurate speech production. Picture is from ASHA website


 Articulation disorders

Articulation disorders are due to difficulty making the correct movements for speech. It usually affects only a small number of sounds. Common examples in English are where the ‘s’ sound is said like a ‘th’ sound e.g. sing sounds like thing (a lisp) and ‘r’ sounds like ‘w’ e.g. ‘rabbit’ sounds like ‘wabbit’. The child finds it difficult to say the sound on its own and in words.  Some children find this impacts on their wellbeing and mental health. Referral to speech and language therapy can help. Some articulation disorders make speech very hard to understand. These children should be referred to speech and language therapy.


Phonological disorders


Phonological disorders are when the child has difficulty using sounds in the correct place in a word or is using the wrong sounds in words. The child can say the sound on its own but has difficulty saying it in words or misses out sounds e.g. the child can say ‘k’ and ‘g’ on their own, but says ‘teep’ instead of ‘keep’ or ‘pid’ instead of ‘pig’. These can make the child very difficult to understand to people outside their family and sometimes to close family members. These children should be referred to speech and language therapy.


 Speech Sound Disorders: Articulation and Phonology 


Dysarthria


Dysarthria is a condition characterized by impaired articulation of speech due to neurological or muscular dysfunction affecting the muscles used for speaking. Anarthria refers to a more severe form where speech is completely absent. These disorders are typically caused by conditions affecting the central or peripheral nervous system, such as stroke, traumatic brain injury, cerebral palsy, or neurodegenerative diseases (ICD-10-CM R47.1) 

Differences in voice quality (e.g., strained, breathy) - 

Reduced breath support and short phrases - 

Altered resonance (e.g., hypernasality) - Consistent, imprecise articulation - Prosody changes related to rate and volume 


 newcastle-ebp-dysarthria-assessment-tool-n-dat-dec-2015.pdf 


 Practical-resource-pack-for-someone-with-dysarthria.pdf 


Headway: communication problems after brain injury


Stroke Association: communication tools


Aphasia

Aphasia (also called dysphasia) is a condition that makes it difficult to communicate. It can make it hard to speak, read, write and understand others. It's often caused by a stroke or brain injury. There's no cure, but people usually improve with treatment


  


Expert opinion

Prosody importance/definition

Different from Other Speech and language Disorders

Professor Emeritus Anita Van de Merwe who specialises in speech apraxia at Pretoria University, writes for Speech Apraxia International-Apraxia of speech is a disturbance of the voluntary control of speech movements. It may occur in children as childhood apraxia of speech (CAS) or as acquired apraxia of speech (AOS) due to acquired damage

Professor Emeritus Anita Van de Merwe who specialises in speech apraxia at Pretoria University, writes for Speech Apraxia International-Apraxia of speech is a disturbance of the voluntary control of speech movements. It may occur in children as childhood apraxia of speech (CAS) or as acquired apraxia of speech (AOS) due to acquired damage of the areas in the brain responsible for motor planning. Both these conditions should be differentiated from a language disorder such as aphasia, and from dysarthria, which is a disorder of lower levels of motor control. Speech apraxia is a disorder in planning the place and manner of articulation of speech sounds. 

Assessment of prosody

Prosody importance/definition

Prosody importance/definition

Prosody can be assessed using acoustic measures, perceptual assessment, or a combination of both (Littlejohn & Maas, 2025).


Acoustic Assessment

  • Measures lexical stress, syllable duration, loudness and pitch.
  • More objective but time-consuming.


Perceptual Assessment

  • Formal or informal assessment by listening to speech.
  • Easier to use clinically bu

Prosody can be assessed using acoustic measures, perceptual assessment, or a combination of both (Littlejohn & Maas, 2025).


Acoustic Assessment

  • Measures lexical stress, syllable duration, loudness and pitch.
  • More objective but time-consuming.


Perceptual Assessment

  • Formal or informal assessment by listening to speech.
  • Easier to use clinically but more subjective.
  • Judgements can be influenced by the listener's language and dialect.
  • By around 8 years of age, typically developing children usually have adult-like prosody.


Standardised Assessments


DEMSS – evaluates lexical stress in children with suspected CAS.

Developers: Edythe A. Strand & Rebecca J. McCauley

  • Designed specifically for the differential diagnosis of childhood apraxia of speech (CAS). 
  • Age: 3 years and older. 
  • Assesses speech accuracy, consistency, vowels, prosody and response to cueing.  

Official information:

  • Brookes Publishing – DEMSS 
  • ASHA Store – DEMSS Manual


VMPAC-R – assesses prosody, pitch, loudness, resonance, voice quality and speech rate.

Developers: Deborah Hayden & Aravind Namasivayam

  • Age: 3–12 years. 
  • Assesses neuromotor speech skills including speech movement, sequencing, prosody, resonance, loudness and speech rate. 
  • Not specific to CAS but commonly used in motor speech assessment.  

Official website:

  • VMPAC-R Official Website


PEPS-C – assesses prosodic skills 

Developers: Sue Peppé & Julie McCann

  • Age: 4 years and older. 
  • Assesses receptive and expressive prosody. 
  • Evaluates stress, intonation, phrasing and prosodic function. 
  • Useful for assessing prosody across a range of communication disorders, although not designed specifically for CAS.  

Official website:

  • PEPS-C Official Website 
  • PEPS-C 2015 Information


Prosody-Voice Screening Profile – evaluates prosody and voice across a wide age range.

 

Developer: Lawrence D. Shriberg & Jane L. McSweeney

  • Age: 3–81 years. 
  • Screens prosody and voice, including stress, rate, pitch, loudness and resonance. 
  • Limited normative data and requires training for administration.  

There is no current standalone official website for the PVSP. It is primarily available through published manuals and research literature rather than a commercial publisher.


Informal Assessment

  • Listen to spontaneous conversation.
  • Use reading passages (e.g. The Caterpillar Passage) for older children.
  • Use multisyllabic word lists for younger children.
  • Assess:
    • Lexical stress
    • Contrastive stress
    • Intonation
    • Rhythm
    • Pitch
    • Loudness
    • Emotional tone

Assessing Vocal Tone

  • Model different vocal tones.
  • Teach emotion through changes in voice.
  • Use book reading and role-play to practise expressive intonation.
  • Encourage variation in pitch, loudness and emotional expression.

Prosody importance/definition

Prosody importance/definition

Prosody importance/definition

Speech often sounds robotic with abnormal rhythm, stress patterns, and intonation. The person may speak very slowly with unusual pauses between syllables or words as they mentally plan each sound sequence.


Why important?


Brings prominence to some words

Affects meaning

Affects Intelligibility

Signals word and phrases


Importance in  Speech • 

Give

Speech often sounds robotic with abnormal rhythm, stress patterns, and intonation. The person may speak very slowly with unusual pauses between syllables or words as they mentally plan each sound sequence.


Why important?


Brings prominence to some words

Affects meaning

Affects Intelligibility

Signals word and phrases


Importance in  Speech • 

Gives meaning and context to speech • Social cues and expectations  

• How vs what is said • 

Keeps listener engaged • 

Prosodic errors and decreased intelligibility  (Klopfenstein, 2009) •

Assists infants and toddlers to learn new words  (Gervain et al., 2020) • 

Enhances early listening skills • 

Prosodic aspects emerge before other language areas (see  Souda et al., 2022) Teaches infants and toddlers structure/melody of  sentence 


Components of Prosody 

Intonation​ Variation in pitch or tone to  convey particular meaning


Phrasing/Rhythm​ Pattern of stressed and  unstressed words  


Loudness​ Volume can highlight information Stress Emphasis on certain syllables or  words. 


Pitch How high or low the voice is Voice Quality Vocal tone conveys emotion (joy,  sadness, worry, etc.)  


Pace/Rate​ How quickly or slowly words  spoken 


Pausing/Juncture Pauses: interruptions in flow of  speech to convey punctuation Juncture: Pausing with changes in  tone and rate 


Prosody Screens


 Prosody-Voice Screening Profile (PVSP; Shriberg, Kwiatkowski, & Rasmussen, 1990)  

https://phonology.waisman.wisc.edu/about-the-pvsp/



Speech Prosody matrix -Teachers pay teachers https://www.pinterest.com/pin/speech-prosody-matrix--81768549490206968/


http://www.peps-c.com/

 PEPS-C: a test of prosodic ability PEPS-C: a test of prosodic ability


Apps

The prosody toolkit  by Biospeech (Apple App) Search for prosody assessment (not prosody toolkit) https://www.biospeech.com/prosody-toolkit/


Voice analyst https://www.amazon.com/dp/B00PMP30E6?lv=shuf&channelId=500&plpRedirect=mhFallback (Apple app--$17.99; Google Play--$14.99) • Looks at pitch and volume in real-time • Provides visual feedback 


Waveform, Spectrogram, and Pitch (WASP) • Free, web-based program • Provides waveform, spectrogram, and pitch track and marks  WASP2 - Waveform, Spectrogram and Pitch Display 


Praat with Plug-ins Prosody Pro/ProsoBox 

Free software • Provides acoustic analysis with waveforms and spectrograms  

Plug-ins can provide more sophisticated analyses   Praat: doing Phonetics by Computer   PRAAT Tutorial 


Altering a component of prosody alters the articulatory  movements needed to produce the target 

Example: increased loudness 

More subglottal air pressure, more vocal fold tension,  increased jaw and lip aperture which means the tongue  position is lowered • Increased Loudness  Example: increased stress on syllable Pitch increases, higher volume, longer duration, stressed  vowels require increased muscle effort. Articulatory  targets for stressed syllable are therefore different. than  when unstressed  


 Do children omit stressed or unstressed syllables? Think "banana" or  "television" 


Do not stress missing syllable because it teaches incorrect lexical stress • 


Try backward chaining for multisyllabic productions  • " Vi-sion"  "le-vi-sion"  "te-le-vi-sion" 


Very young children


Interactive/Modeling of Vocalizations • Babble Boot Camp (Peter et al., 2019) • Model/imitate at level of development • Coo  • Babbling • Reading stories  • Singing (alerting baby to rhythms)  • Use IDS (emphasize prosodic cues)  

 Babble Boot Camp (BBC) Training | Online ASHA CEUs 


Storybooks (electronic and hard copy) that can help 

Lexical stress and inflection (changing pitch, tone, loudness) 


 Yo! Yes? By: Chris Raschka • (2007) (2014)  Yo! Yes? By: Chris Raschka - YouTube 


Moo by David LaRochelle with illustrations by Mike Wohnoutka  Moo by David LaRochelle with illustrations by Mike Wohnoutka Childrens Read Aloud Bedtime Stories - YouTube 


Childrens Read Aloud  Bedtime Stories Up, Up, Down by R. Munsch (2020)   Up, Up, Down - YouTube 


 Techniques to Work on Prosody - YouTube  Edythe Strand


 Intonation (Fish & Skinder-Meridith, 2023) 

Targeting rising and falling intonation  

Providing visuals and multi-sensory cues to support understanding and  modulation of intonation • Activities to differentiate between rising and falling intonation to improve  understanding and perceptual skills 

Falling intonation 

Counting 

 Making declarative statements including answer questions 

Rising intonation • Asking questions 


 SQR Method (see Fish & Skinder-Meredith, 2023) • 

Statement (clinician or printed): The dog is loud.  • 

Question (clinician): How does the dog sound? • 

Response (child): The dog is LOUD.  Question: What is loud?  

Response: The DOG is loud. 

May use visuals to highlight stressed words 




Phonological awareness

Why working on speech alone may not be sufficient -language should also be assessed

Why working on speech alone may not be sufficient -language should also be assessed

Speech apraxia especially developmental, can affect the ability to detect parts of speech or 'phonemes.' It can affect reading, writing, and spelling.


  About the NIPA | Newcastle Phonological Awareness | Newcastle University includes assessment and intervention suitable for all children but specifically for children with SLCN. This interv

Speech apraxia especially developmental, can affect the ability to detect parts of speech or 'phonemes.' It can affect reading, writing, and spelling.


  About the NIPA | Newcastle Phonological Awareness | Newcastle University includes assessment and intervention suitable for all children but specifically for children with SLCN. This intervention provides adaptable session plans for SLTs.

by Gillon, A Better start to Reading and for preschool children with SSD.


 About the NIPA | Newcastle Phonological Awareness | Newcastle University 


 APAR - Assessment of Phonological Awareness and Reading - Home page 

What is phonological awareness

Why working on speech alone may not be sufficient -language should also be assessed

Why working on speech alone may not be sufficient -language should also be assessed

Why working on speech alone may not be sufficient -language should also be assessed

 It may be that other areas also need a focus. Resources such as Elklan products will provide a good basis for holistic intervention www.elklan.co.uk

  • Attention and listening
  • Helping school age children understand spoken language and develop verbal reasoning skills
  • Helping school age children develop their expressive language
  • Phonological proc

 It may be that other areas also need a focus. Resources such as Elklan products will provide a good basis for holistic intervention www.elklan.co.uk

  • Attention and listening
  • Helping school age children understand spoken language and develop verbal reasoning skills
  • Helping school age children develop their expressive language
  • Phonological processing activities
  • Developing vocabulary and story writing and use of mind maps
  • Helping school age children develop their social skills
  • Helping school age children with unclear speech

Elklan shop

Structured Assessment for Childhood Apraxia of Speech (CAS)

Why working on speech alone may not be sufficient -language should also be assessed

Structured Assessment for Childhood Apraxia of Speech (CAS)

A Structured Assessment for Childhood Apraxia of Speech (CAS)


No single assessment can diagnose Childhood Apraxia of Speech (CAS). Instead, assessment involves combining information from several tasks to identify the characteristic features of CAS while ruling out other speech sound disorders.

Key Terms

  • Oral motor skills – Movements of the l

A Structured Assessment for Childhood Apraxia of Speech (CAS)


No single assessment can diagnose Childhood Apraxia of Speech (CAS). Instead, assessment involves combining information from several tasks to identify the characteristic features of CAS while ruling out other speech sound disorders.

Key Terms

  • Oral motor skills – Movements of the lips, tongue, jaw and soft palate used for eating, drinking and non-speech tasks.
  • Oral apraxia – Difficulty planning and carrying out voluntary mouth movements that are not related to speaking (e.g. sticking out the tongue on request). Oral apraxia often occurs alongside CAS but is not required for a diagnosis.
  • Phonemic inventory – The speech sounds (consonants and vowels) a child can produce correctly.
  • Speech sample – A recording of the child's spontaneous speech during conversation or play.
  • Dynamic assessment – An assessment in which the clinician provides different cues and repeated attempts to see how the child's speech changes with support.
  • Stimulability – How easily a child can produce a sound or word after being given a model or cues.
  • Syllable structure – The pattern of consonants and vowels within a word (e.g. CV = "me", CVC = "cat", CVCV = "baby").
  • Cueing – Strategies used by the therapist to help speech production, such as visual, verbal, tactile or gesture cues.
  • Core characteristics of CAS – The speech features most strongly associated with Childhood Apraxia of Speech, such as inconsistent errors, disrupted transitions between sounds, and inappropriate stress.

Step 1: Non-Speech Oral Motor Examination (NSOME)

Purpose

To assess how well the child can move their lips, tongue and jaw during non-speech tasks.

Why is this important?

This assessment helps determine whether the child has oral apraxia, which is difficulty planning voluntary mouth movements that are unrelated to speech. Although oral apraxia is more common in children with CAS, it does not diagnose CAS on its own.

Step 2: Phonemic Inventory

Purpose

To identify which speech sounds the child can already produce.

Why is this important?

Knowing the child's sound repertoire helps the therapist choose appropriate therapy targets. Therapy is usually most successful when initial target words contain sounds that the child can already produce independently or with prompting.

This assessment usually considers all 22 English consonants and 12 English vowels.

Step 3: Speech Sample

Purpose

To observe the child's everyday speech during natural communication.

Why is this important?

A spontaneous speech sample allows the therapist to:

  • identify speech sounds used naturally
  • observe consistency of errors
  • listen for the core characteristics of CAS
  • understand how speech differs in conversation compared with structured testing.

Step 4: Dynamic Articulation Assessment

Purpose

To assess how consistently the child produces speech sounds across repeated attempts.

Why is this important?

Unlike a standard articulation test, a dynamic assessment asks the child to attempt the same sounds or words several times while different levels of support are provided.

Children with CAS are often consistently inconsistent—they may produce the same word differently each time they say it. Repeated trials are therefore essential to identify this important feature.

Step 5: Dynamic Motor Speech Assessment

Purpose

To identify the level of speech complexity at which the child's speech begins to break down.

Why is this important?

The assessment examines increasingly complex syllable shapes and words to determine the child's current motor speech abilities. This helps ensure therapy targets are challenging enough to encourage progress while still allowing success.

During this assessment the therapist aims to:

  • identify the core characteristics of CAS
  • determine which syllable structures are most difficult
  • assess stimulability
  • identify which cueing strategies are most effective for that child.

Step 6: Core Word List

Purpose

To develop a small set of highly functional words that the child can practise consistently.

Why is this important?

Children with severe CAS or a limited vocabulary often struggle to combine individual words into longer phrases because each new word sequence requires additional motor planning.

For example, a child may be able to say:

  • "go away"
  • "dinosaur"

but struggle to produce:

  • "Go away, dinosaur."

Practising a consistent set of everyday words helps build confidence and supports the development of longer, more accurate utterances.

Interpreting the Results

The clinician should review the findings from the speech sample, dynamic articulation assessment, and dynamic motor speech assessment together.

If the child demonstrates four or more core characteristics of CAS across three or more assessment contexts, this provides evidence that CAS is likely.

It is important to remember that CAS can occur alongside other speech sound disorders, such as a phonological disorder. A child with both conditions may require treatment that addresses both:

  • Motor planning and sequencing (for CAS), and
  • Speech sound patterns (for phonological disorder).

Accurate differential diagnosis is essential because a phonological therapy approach alone does not address the underlying motor planning difficulties seen in Childhood Apraxia of Speech. 

Elklan shop

Apraxia of speech is a “neurologic speech disorder that reflects an impaired capacity to plan or program sensorimotor commands necessary for directing movements that result in phonetically and prosodically normal speech”


Duffy (2013)

Childhood Apraxia Speech-Developmental dyspraxia of speech

Adults with CAS-SLT/SLP referrals

Therapy can be very useful as an adult and tends to be led by your needs. For example, you may seek functional help speaking at meetings or pacing speech to avoid misarticulation. 


You have the same right to speech and language services as children and in the NHS can self-refer to provision.


 “I still have issues with pronunciation of words”: A mixed methods investigation of the psychosocial and speech effects of Childhood Apraxia of Speech in adults: International Journal of Speech-Language Pathology: Vol 25, No 2 


Employment/study/driving

Talking with a child who has apraxia of speech

How you and other people respond to your child's communication is important. It will shape your child’s confidence and how they see themselves as a communicator.

It's natural to feel worried at first, but if you seem anxious, your child may also pick up on this. Try to stay calm and positive, even if you're feeling unsure inside.

Here are some things you can do. They may not seem like big changes, but they can make a huge difference by reducing pressure and supporting your child’s communication:

Slow down your own rate of speech and use longer pauses. This helps keep the conversation relaxed and gives your child time to process and answer.
 

Have regular one-to-one time with your child, even for just five minutes. Choose a time when they don’t have to compete with other people or tasks for your attention.
 

Ask one question at a time and allow extra time for responses. Show them that you follow their speech but are not putting pressure on them.
 

Allow the child to point/gesture as a valid form of communication, Try not to insist that everything must be spoken.
 

Don’t keep correcting their speech. While it may feel supportive, it can be frustrating if you guess wrong.
 

Keep natural eye contact. Show interest in what they’re saying, not how clearly the words come out.
 

Focus on the message, not the mistakes. Listen to what your child is telling you, rather than how they pronounce it.
 

If it feels right, gently acknowledge when talking is tricky. Encourage and reassure them, for example: “Talking can be hard to practise, but you’re doing really well and I love hearing what you have to say.”
 

Make sure everyone gets a turn to speak. Give your child equal opportunities to share their ideas.
 

Avoid telling them to “say it properly,” “slow down,” or “try harder.” Instead, praise the ideas and what they are saying. 

Interventions for Speech Sound Disorders in Children, Lynn Williams (2020)

Interventions for Speech Sound Disorders in Children, Lynn Williams (2020)

An essential building block of every speech-language pathologist’s professional preparation, the second edition of this bestselling textbook is a comprehensive critical analysis of 21 interventions for highly prevalent speech sound disorders in children. 


American Speech Hearing Association Resources

  • Childhood Apraxia of Speech—Position Statement
  • Childhood Apraxia of Speech—Technical Report
  • Consumer Information: Childhood Apraxia of Speech
  • Focusing Care on Individuals and Their Care Partners
  • Interprofessional Education/Interprofessional Practice (IPE/IPP)



Other Resources


  • Age of Acquisition of English Consonants (Crowe & McLeod 2020) [PDF]
  • Apraxia Kids

  • Child Apraxia Treatment: Once Upon a Time Foundation
  • National Institute on Deafness and Other Communication Disorders | Apraxia of Speech


  • WETA Reading Rockets | The Development of Phonological Skills

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Childhood Apraxia of Speech

Childhood apraxia of speech multilingual children

CAS Diagnosis Isn’t Always Clear-Cut: Why Some Children Go Undiagnosed

Children with CAS can successfully learn more than one language, although symptoms may present differently because languages vary in their sounds, word shapes and stress patterns.


Assessment

Consider both languages, including:

  • Speech sounds (phonemes)
  • Phonology
  • Word shapes
  • Stress patterns


Treatment

  • Motor learning principles remain the same across languages.
  • Target speech features shared by both languages where possible to encourage generalisation.
  • Therapy should support all of the child's languages whenever possible.


Home Language (L1)

  • Using the home language supports learning.
  • Strong L1 skills help development of a second language.
  • Treating the home language does not hinder learning another language.
  • Bilingual intervention is recommended whenever possible.


Apraxia Kids | Bilinguals With CAS: You’ve Got This


Portuguese Resources on Speech Apraxia

APRAXIA DE FALA NA INFÂNCIA - O ATO DE FALAR É SURPREENDENTE - YouTube 

 Procurando por alguns recursos em português sobre Apraxia da Fala na Infância, experimente o cana
 


Punjabi Resources


https://www.new-pathways.co.uk/panjabi-aphasia-screening-test


 

AAC Language Library

A library of AAC resources catalogued by language


 AAC Language Library | Ace Centre 


  

India

edusoft.ro https://share.google/wq8w5IqPapixsYKqT

Israel

https://share.google/dkrqBjD1DOXwfPHj1

CAS Diagnosis Isn’t Always Clear-Cut: Why Some Children Go Undiagnosed

CAS Diagnosis Isn’t Always Clear-Cut: Why Some Children Go Undiagnosed

Some people may go undiagnosed with Childhood Apraxia of Speech (CAS) due to the circumstances of their evaluation or because their difficulties resemble CAS but do not meet the diagnostic threshold. This group may include children who are too young to participate fully in assessment, those with additional challenges such as cognitive impairment or hearing loss, or those who present with some but not all of the features required by a clinician to confirm CAS. 

Adults symptoms of CAS

Adults with CAS may continue to present with symptoms and might find support helpful.


Adults typically present with fewer features especially if they have benefited from early therapy. 


. Examples of residual symptoms include:

  • restricted   and stable phonetic repertoires over time
  • atypical      prosody, such as uniform pitch, loudness, and duration across syllables in      multisyllabic words
  • vowel  errors
  • difficulty  generalising accurate productions from simple syllable shapes (e.g., CV)      to more complex ones (e.g., CCVC, CVCVC).

 What happens when children with childhood apraxia of speech become adults with Tricia McCabe -World Expert on CAS 

https://www.patreon.com/SpeechApraxiaInternational/posts/what-happens-of-165497307?utm_medium=clipboard_copy&utm_source=copyLink&utm_campaign=postshare_creator&utm_content=join_link


Another excellent linked video by Friend of Speech Apraxia Mac MacKay above. Thanks Mac for all you are doing to raise awareness!



Looking Beyond Phonology: Motor Planning Strategies for Children with Speech Difficulties

    Treatment strategies informed by motor learning principles—commonly applied in CAS intervention—can be adapted to support these children. Key strategies include:

  • increasing practice opportunities, both through more frequent sessions and a higher number of productions per session
  • using  facilitators such as slowed rate, tactile cues, or visual prompts to support accuracy
  • regularly employing assessment probes to ensure that gains are stable and  generalisable rather than short-lived.

By applying these strategies, clinicians can address speech motor planning difficulties in young children—even when a formal CAS diagnosis is not given.

Childhood Apraxia of Speech compared with Acquired Apraxia of Speech

Childhood Apraxia of Speech compared with Acquired Apraxia of Speech

Although both CAS and AOS are motor speech disorders involving difficulties with planning and programming speech movements, there are important differences.


Childhood Apraxia of Speech (CAS)

  • Present from early childhood during speech and language development. 
  • Occurs before the speech and language system has fully developed. 
  • Affects the development of speech, phonology and language skills. 
  • Children have not yet developed automatic or overlearned speech patterns. 
  • Speech and language skills develop atypically from the outset. 

Acquired Apraxia of Speech (AOS)

  • Occurs after speech and language have developed normally. 
  • Results from damage to the brain (e.g. stroke, traumatic brain injury or neurological disease). 
  • Disrupts a previously intact speech and language system. 
  • Automatic or overlearned speech (e.g. counting, greetings or familiar phrases) may be relatively preserved. 
  • Previously learned speech skills are lost or impaired following brain injury

Questions and answers

Can CAS still affect me as an adult?

 While many improve with therapy, some adults continue to experience residual speech challenges, like difficulty with articulation, rhythm, or confidence when speaking.  Does CAS get better on its own? 

What are the signs?

You might notice inconsistent speech errors, effortful or slowed speech, challenges with multi-syllabic words, or anxiety about speaking in social settings. These issues can fluctuate depending on fatigue, stress, or environment.  


 “I still have issues with pronunciation of words”: A mixed methods investigation of the psychosocial and speech effects of Childhood Apraxia of Speech in adults: International Journal of Speech-Language Pathology: Vol 25 , No 2 - Get Access 

Can My Speech Still Improve?

 Absolutely. While progress may be slower than in childhood, speech therapy with a specialist who understands motor speech disorders can help refine and improve fluency, and build confidence. Approaches may include motor-based therapy, prosody training, and assistive tools. Either go via the NHS or use ASLTIP for a private speech and language therapist in your area Find a speech therapist - ASLTIP  and look here for adult therapy approaches  

I get nervous about how people perceive my speech;what can I say?

You can keep it simple and honest: “I have a speech motor disorder that makes some words come out differently, but I’m working on it.” People often appreciate the clarity, and it can reduce pressure during conversations. You may get questions like "where are you from?" as others try to place your accent. Apraxia of speech can sometimes distort what we say, so they are just being curious.   Saying the Words I’ve Avoided My Whole Life - Apraxia of Speech 

Are there practical ways to manage speaking challenges in work or life?

Yes. You might try pacing strategies (like pausing between phrases), rehearsing key phrases ahead of time, using supportive tech (e.g. text-to-speech apps), or practicing public speaking in safe environments. Confidence often grows with preparation and support. See our 'Information sources for study and employment' 

Who’s to say what ‘normal’ is? I personally really dislike the word ‘normal.’ Everyone is ‘different’ in some way or another.


Mikey Akers

Acquired Apraxia of Speech (AOS)

How do I get it

 Acquired Apraxia of Speech (AOS) is a motor speech disorder that affects a person’s ability to plan and coordinate the movements needed for clear, accurate speech. It is not caused by muscle weakness or paralysis; instead, the brain has difficulty organising and sending the correct messages to the muscles used in speech.

AOS most commonly appears after a brain injury, such as a stroke, traumatic brain injury or a neurological condition. Individuals with AOS usually know what they want to say but the words may come out incorrectly, distorted or with unusual pauses and effort. Speech can be inconsistent, the same word might be spoken clearly one moment and be difficult the next, which can be frustrating and confusing.

Speech and Language Therapists diagnose AOS through detailed assessment and provide tailored therapy. Support often focuses on motor-based speech practice, repetition and techniques to strengthen the brain’s planning and speech movement connection. Additional communication tools, such as gestures, writing, communication books or communication apps (low and high tech Augmentative and Alternative Communication) may also help individuals communicate confidently.

Because AOS varies from person to person, assessment by a Speech and Language Therapist is important. With early, consistent support and understanding from family and the community, many people with AOS make meaningful progress in their communication skills. Thank you for taking the time to learn more about this important condition. Raising awareness helps ensure that people feel supported, heard and empowered during their recovery.


Why does it occur

Organisations that support the health event can have great information, such as the Stroke Association, which has loads of helpful resources. Types of communication problems | Stroke Association 


CogNeuroApp—explains where breakdown can occur in processing


Top 10 things to know about AOS

https://www.instagram.com/p/DQpRtCjjFPK/?igsh=Nzh5NDZrMTNmcW9q

 


Meet a therapist, Kimberley Williams Founder, Nova Speech Therapy

 My name is Kimberley Williams, founder of Nova Speech Therapy in West Yorkshire and I have a keen professional interest in supporting individuals with communication difficulties, particularly Acquired Apraxia of Speech (AOS).  She has contributed to the contect of this section. Kimberley has done a fantastic podcast for our 'Talking Speech Apraxia' series.

Diagnosis

 There isn’t one test that confirms or rules out AOS. The patient must meet specific diagnostic criteria in the speech assessment (Molloy & Jagoe, 2019). According to Wambaugh et al. (2006), the primary features of AOS include:


  1. slow, effortful speech
  2. dysprosody (i.e. equal stress pattern)
  3. sound distortions
  4. distorted substitutions


Duffy (2019) also notes that individuals with AOS have greater difficulty with sequential motion rates (SMRs) compared to alternating motion rates (AMRs).


Non-diagnostic characteristics of AOS can be found in aphasia without apraxia, so their presence alone does not indicate apraxia (despite what you may have learned in school years ago). These characteristics include:


  • trouble initiating speech
  • groping to find the right articulatory posture
  • perseverative errors
  • more difficulty with longer words
  • self-correcting frequently, indicating error awareness
  • easier automatic speech (e.g. counting, curse words)
  • islands of error-free speech

Example: Following conversation easily but struggling to respond verbally.

Visible groping movements refer to noticeable searching or trial and error movements of the lips, tongue or jaw when trying to produce a sound or word. These movements reflect the person’s effort to find the correct speech position. However, groping is not always present in every individual with AOS. 


There are also exclusionary characteristics, like normal or fast speech rate or typical prosody. If a person speaks normally or quickly, such as a person with fluent aphasia, they cannot have AOS. 

Published tests that can be useful


 The Apraxia of Speech Rating Scale: Reliability, Validity, and Utility | American Journal of Speech-Language Pathology 


 ABA-2: Apraxia Battery for Adults-Second Edition 




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Aphasia, dysarthia or apraxia of speech?

 Aphasia can affect both receptive and expressive language, not just comprehension.There can be overlap in symptoms among acquired conditions, which complicates diagnosis and treatment planning.

Dysarthia effects muscle coordination or movement and may lead to symptoms like slurred speech.

AOS can occur alone but it frequently co-occurs with aphasia and/or dysarthria and may also be seen alongside dysphagia when wider motor systems are involved. 

 Ask the Expert Webinars - National Aphasia Association 


 Dysarthria in Adults 


Other conditions

Severity ranges and symptoms

Some people experience subtle prosodic disturbances (e.g. rhythm or speed of speech) that might go unnoticed by unfamiliar listeners.
Others have severe forms, struggling to produce any intelligible speech and may use AAC instead.

Acquired Apraxia of Speech: A Treatment Overview | The ASHA Leader Archive 


Therapy apps

Therapy focuses on improving speech clarity, coordination, and confidence.
Exercises may include sound repetition, syllable practice, and structured word-building.
 

Visual cues, gesture support, and written prompts can help speech planning.
 

Sessions are personalised to suit your goals, abilities, and communication style


Therapy apps such as Cuespeak can be really effective. 


Speech Apraxia UK undertook an impartial review of this excellent product.

 

Cuespeak review

Common signs

Sounds may come out in the wrong order, even after several attempts.
 

The person often knows it’s wrong but can’t fix it (e.g., saying hos-ti-pal).
 

Some words may be spoken clearly, while others are much harder.
 

Speech errors can vary from one attempt to the next, with hesitations or struggles to shape the word.
 

Automatic speech (like days of the week) may be easier than creating new sentences.


ASHA Resources

  • Aphasia
  • Apraxia of Speech in Adults
  • Assessment Tools, Techniques, and Data Sources
  • Childhood Apraxia of Speech
  • Dynamic Assessment
  • Focusing Care on Individuals and Their Care Partners
  • Person-Centered Focus on Function: Acquired Apraxia of Speech [PDF]
  • Speech Sound Disorders: Articulation and Phonology
  •  Apraxia of Speech (Childhood) 

Other Resources

  • American Stroke Association: Aphasia vs. Apraxia
  • National Institute on Deafness and Other Communication Disorders (NIDCD): Apraxia of Speech  
  • United States Society for Augmentative and Alternative Communication


Diagnosis

Frequently co-occurring condition—Aphasia

 Ask the Expert Webinars - National Aphasia Association 


 Types of Aphasia | The Aphasia Library 


 AphasiaBank 


 Home | Aphasia Pathway 


 Acquired apraxia of speech is not aphasia 

Acquired apraxia of speech resources

ASHA evidence map for apraxia of speech

 Apraxia of Speech (Adult) 


Conversations with aphasia learning resource

 Better Conversations with Aphasia: an E-Learning Resource | Short courses - UCL – University College London 


Communication partner training for carers

 Microsoft Word - Communication Partner Training Handout.docx 


Acquired apraxia of speech article in RCLST bulletin


 bulletin-may-2015.pdf 


 bulletin-december-2015.pdf 



Relearning communication

Aphasia & Apraxia Recovery and Healing

It is important to see a registered speech and language therapist /pathologist to get an adequate assessment. Some people also find doing excersises helpful. Books like these are not a substitute for speech and language therapy but can start to rebuild confidence.


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Aphasia & Apraxia Recovery and Healing

Aphasia & Apraxia Recovery and Healing

 The Aphasia & Apraxia Recovery and Healing Workbook is a practical, supportive tool designed to help individuals improve communication skills and rebuild confidence after a stroke or brain injury. 


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Acquired apraxia of speech after a stroke

Stroke and Brain Damage

Common Communication Problems

Language and Motor Planning

 A stroke occurs when the blood supply to part of the brain is cut off, causing damage to brain cells. Speech apraxia happens when the areas of the brain responsible for planning and coordinating the movements needed for speech are affected. This means that even though the muscles may work properly, the brain struggles to send the correct instructions. 

 Acquired Apraxia of Speech Is Not Dysarthria 

Supporting someone aftera a stroke

Language and Motor Planning

Common Communication Problems

Language and Motor Planning

 Speaking involves several brain regions working together. The brain must not only understand language but also plan and sequence the movements of the lips, tongue, and jaw. When a stroke disrupts these motor planning areas, a person may know what they want to say but cannot get the words out clearly or consistently. 

Speech Therapy Post Stroke

Common Communication Problems

Common Communication Problems

Around two-thirds of people experience communication difficulties after a stroke. For some, this includes apraxia of speech, where words come out jumbled, effortful, or inconsistent.This can be particularly frustrating, as people often remain aware of what they want to say but cannot produce it smoothly. 

Stroke resources

Individual Variation

The impact of a stroke on communication depends on its size and location in the brain. Not everyone who has a stroke will develop apraxia of speech, but if the left hemisphere motor speech areas are affected, the likelihood is higher. Each person’s recovery journey will be unique. 


 Download stroke information packs | Stroke Association 

Fluctuating Abilities

 Apraxia of speech after stroke can vary from day to day. Tiredness, low mood, or noisy environments may make it harder for someone to speak clearly. A person may have moments of fluent speech but struggle the next moment, which can be confusing for both the speaker and their conversation partners. 


 Recovering from a stroke - NHS 

The Role of Support and Therapy

 With the right therapy and support, communication can improve after a stroke. Speech and language therapy focuses on rebuilding speech motor planning skills, while encouragement from family and friends helps maintain confidence. Supportive environments make a significant difference in daily communication success. 


Focusing Care on Individuals and Their Care Partners

Accessing speech and language therapy

Advice for friends and family

Had A Stroke? Now What? Hospital to Rehabilitation and Beyond (2020) Tom Balchin

Advice for friends and family

It can be hard to support a loved one. 

Here is some advice.

Get involved.
Work together

Be patient.
Encourage independence – Make time.
Look after yourself. 

There are loads of resources which may help such as this book.

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Helpful products

Had A Stroke? Now What? Hospital to Rehabilitation and Beyond (2020) Tom Balchin

Advice for friends and family

Diagnosis may be difficult (at least initially) if speech is minimal. However during the early stages communication aids can be very useful.


Talking devices such as those by Talking Products can be helpful after a stroke. 


Tools such as paper-based communication and apps can help with diagnosis.

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Had A Stroke? Now What? Hospital to Rehabilitation and Beyond (2020) Tom Balchin

Had A Stroke? Now What? Hospital to Rehabilitation and Beyond (2020) Tom Balchin

Had A Stroke? Now What? Hospital to Rehabilitation and Beyond (2020) Tom Balchin

Here you will find out how to cope with stroke, and recover from it optimally. Taking you through the full process; from arriving at hospital onward. this book reveals a battle-plan of how to rehabilitate effectively and self-manage at home over the long term in a relatively cost-free way

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"I have apraxia, but apraxia doesn't have me."

Primary Progessive Apraxia of speech

What is it?

Primary progressive apraxia of speech is a neurodegenerative motor speech disorder characterized by a gradual loss of the ability to plan and sequence speech movements.

Overview

PPAOS is a progressive motor speech disorder in which the brain gradually loses the ability to plan and program the movements required for speech. Unlike stroke-related apraxia, which occurs suddenly, PPAOS develops slowly, initially causing subtle speech difficulties that worsen over time. Individuals often know the words they want to say but struggle to articulate them correctly, resulting in distorted or halting speech aphasia.orgaphasia.org+2.

Causes and Pathology

PPAOS is most commonly associated with frontotemporal degeneration (FTD), particularly 4-repeat tauopathies such as corticobasal degeneration (CBD) and progressive supranuclear palsy (PSP). These conditions lead to atrophy in brain regions responsible for planning speech movements, primarily in the left hemisphere. Unlike Alzheimer’s disease, memory and spatial skills are typically preserved in the early stages

 Primary Progressive Apraxia of Speech (PPAOS) - National Aphasia Association 

 Delayed Progressive Apraxia of Speech:A Distinct Clinical Subtype


What you might be asked in a healthcare visit for later developing speech apraxia

When did the symptoms of the speech issues begin?

Is speech harder to understand at certain times, such as when you are tired or stressed or speaking quickly?

Do you understand what others say to you?

Do others understand what you're saying?

Have you noticed changes in your speech, such as the way you move your jaw, tongue and lips to make speech sounds, or changes in the sound of your voice?

Is it hard to plan or coordinate mouth movements for speech?

Have there been changes in writing, typing or non-speech movements?

(taken from the Mayo Clinic website)

How common is it?

More commonly diagnosed in people aged 50–70. No study has yet looked into its prevalence. However, it can be estimated at 4.4 per 100,000 (Botha, H., & Josephs, K. A., 2019).
Studies suggest that PPAOS may account for about 20–30% of cases initially diagnosed as primary progressive aphasia (PPA) when speech motor impairments are the dominant symptom.

Due to overlap with other neurodegenerative diseases, the condition is often underdiagnosed or misdiagnosed in early stages.

 Apraxia of Speech with Primary Progressive Aphasia 


 Primary Progressive Aphasia and Apraxia of Speech - PMC 


 Corticobasal syndrome and speech apraxia 


 Primary progressive apraxia of speech: from recognition to diagnosis and care 


Research

 

Chance to get involved in key research into PPAOS

https://www.mayo.edu/research/clinical-trials/cls-20342653


What are the symtoms

 Primary Progressive Apraxia of Speech (PPAOS) can present in different ways, each affecting how your speech sounds.

Prosodic AOS

  • Speech is slow and uneven.
  • Words or syllables may be stretched or broken apart 
  • The rhythm can sound unnatural or robotic.
     

Phonetic AOS

  • Speech sounds may be unclear or slightly distorted.
  • You might visibly work to find the right mouth position for certain sounds.

Most people with PPAOS experience Prosodic AOS as their main difficulty, but Phonetic AOS can also be present. Many have a combination of both patterns.


Chris Kamara's Experience

  

Chris Kamara says he "suffered in silence" with speech problems for almost two years before he was diagnosed with a thyroid problem. ttps://www.itv.com/news/calendar/2022-12-13/kamara-suffering-with-balance-issues-and-weakness-due-to-thyroid-issue

Speaking to ITV News ahead of a documentary about his condition, Kamara – known to millions by his nickname "Kammy"  said he wanted his experience to be a warning to other people.

He said: "Initially I was in denial. I'm a dinosaur. I suffered in silence for about 20 months and in that time my thyroid gland became virtually non-existent , so that could be the reason for all my problems along the line, by just not going to see a doctor.

"Now not only have I got an underactive thyroid, the apraxia of speech has come on, my balance is no good, I'm really weak."


Chris is a  former Leeds United, Sheffield United, and Bradford City player, from Middlesbrough,. (ITVX, 2025)  Chris Kamara: Lost for Words - ITVX  

Chris Kamara Biography

Resources

 Educational resources for support with diagnosis from Rare Dementia Support (UK Based)

Together we learn – Rare Dementia Support .


Association for Frontotemporal Degeneration

 USA based-Call 866-507-7222 or send an email to info@theaftd.org for answers to your Frontemporal dementia questions

 Diagnosing FTD | AFTD 


Diagnostic checklist- FTD-ALS 

 FTD-ALS - English - Diagnostic Checklist 


Diagnostic checklist Primary Progressive Aphasia (PPA)  

 Diagnostic Checklist - PPA 


Diagnostic checklist  Behavioral Variant Frontotemporal  Degeneration (bvFTD) 

 Diagnostic Checklist - bvFTD 


Diagnostic Checklist- Progressive Supranuclear Palsy (PSP)  

 PSP - English - Diagnostic Checklist 


 Primary Progressive Apraxia of Speech MC194832  Mayo Clinic Information Booklet

 

 Primary Progressive Apraxia of Speech?- A useful resource to print from the https://www.brain.northwestern.edu/docs/Mesulam-Center---PPA-Card.pdf  


Do you want to help research PSP?  If so you can join this register. Our work in congenital conditions and rare diseases - NDRS 



Groups/support organisations


National Aphasia Association

https://aphasia.org/series/ppa-chat-2/

This US organisatgion runs a support group where individuals are invited to learn, share strategies, and connect with each other. 


When: The second and fourth Friday of each month, 2:30-3:30 pm Eastern Time | 1:30 pm Central Time | 12:30 pm Mountain Time | 11:30 am Pacific Time

More Information: This program is for people with PPA / PPAOS and their communication partners. We start as a full group, sometimes with a short presentation. Then, we split into breakout rooms based on PPA / PPAOS type or symptoms, so you can learn and connect with others in a similar situation. There’s also a breakout room for communication partners. Communication partners are welcome to assist during the chat, like using supports


UW Department of Speech and Hearing Science

Do you or a loved one live with PPA/PPAOS? Come explore a group just for you! We meet monthly, on Wednesday afternoons. A free event.

Offered in partnership by UW Department of Speech and Hearing Sciences, UW Memory and Brain Wellness Center, UW Alzheimer's Disease Research Center. 

https://thememoryhub.org/page/ppa-together


Diagnosis

Primary Progressive Apraxia of Speech (PPAOS) is characterized by a gradual decline in motor speech planning and programming, leading to a range of speech impairments.


 

FDG-PET is particularly sensitive in detecting early hypometabolism in premotor regions. MRI may show atrophy later. Advanced imaging helps refine diagnosis.





Possible genetic link

A positive family history for neurodegenerative disease is found in 25% of patients diagnosed with PPAOS (Duffy, J. R., Utianski, R. L., & Josephs, K. A., 2020)


 https://www.sciencedaily.com/rel.../2025/11/251101000713.htm 

Symptoms of Primary Progressive Apraxia

Speech Rate and Segmentation

Sound Errors and Utterance Complexity

Sound Errors and Utterance Complexity

Individuals with PPAOS often exhibit a slow speech rate and lengthened intersegment durations, with syllable segmentation occurring both within multisyllabic words and across phrases.


People with PPAOS tend to speak slowly, with noticeable pauses between syllables and words. This segmentation affects both long words and phrases, making their speech sound choppy or disjointed.

Sound Errors and Utterance Complexity

Sound Errors and Utterance Complexity

Sound Errors and Utterance Complexity

Sound distortions, distorted substitutions, and additions become more prominent with increasing utterance complexity or length.


As sentences become longer or more complex, speech errors increase. These may include slurred or imprecise sounds, incorrect substitutions, or adding extra sounds. This reflects the growing difficulty the brain has with organizing motor plans for complex speech.

Struggle Behaviours

Speech Motor Tasks (SMRs vs AMRs)

Speech Motor Tasks (SMRs vs AMRs)

 

Articulatory groping, false starts, and audible or visible effort are common, reflecting the struggle to initiate or sequence movements.


Visible signs of struggle, like repeated attempts to form words (groping), hesitations, and exaggerated effort indicate the person's difficulty in starting or sequencing the precise motor movements needed for speech.

Speech Motor Tasks (SMRs vs AMRs)

Speech Motor Tasks (SMRs vs AMRs)

Speech Motor Tasks (SMRs vs AMRs)

Speech motor tasks such as Sequential Motion Rates (SMRs) are typically deliberate, slow, and segmented, with distorted productions compared to Alternating Motion Rates (AMRs), which also often show inaccuracy in place or manner.


When asked to repeat sequences like “pa-ta-ka” (SMR), individuals perform slowly and with errors, showing how hard it is to shift between movements. Even simpler tasks like repeating “pa-pa-pa” (AMR) show mistakes, though typically less complex than SMRs. Both reveal underlying motor planning deficits


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Information on this page is for general education and guidance only and is not a substitute for individual professional, legal, clinical or educational advice.. SEND and EHCP information relates mainly to England; arrangements differ elsewhere in the UK and internationally. Support should always be based on the individual needs of the child or young person.

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