Claiming DLA and PIP
Claiming benefits for Speech and Language Difficulties
You can if they have a functional impact.
For example, you may:
- Struggle to explain needs to others, especially under stress
- Need someone to interpret or prompt you in certain settings
- Avoid going out or engaging with people due to communication anxiety
- Be misunderstood easily, affecting your safety or mental wellbeing
If this describes your experience, it’s worth applying. The application form may not have a box specifically labelled “communication,” but this is part of the assessment under both Daily Living (e.g., engaging with others, making decisions) and Mobility (e.g., planning journeys, following unfamiliar routes) components.
PIP IS CHANGING SOON -PLEASE CHECK BEFORE CLAIMING
Points system
How the Point System Works (For PIP)To qualify for PIP, you need to score:
- 8 points for the standard rate
- 12 points for the enhanced rate You’re scored across two components:
- Daily Living (e.g., communication, managing treatments, cooking)
- Mobility (e.g., moving around, planning and following a journey)
Each activity is scored based on how much help you need. It’s important to note:
- You can score points for needing prompts, supervision, or assistance
- It must be needed for at least half the days in a typical week
- You must consider how you manage things reliably (safely, repeatedly, in reasonable time, and to an acceptable standard)
Don’t Forget Other Disabilities or Conditions
If you have co-occurring needs—say, you experience anxiety, have sensory processing difficulties, use AAC (Augmentative and Alternative Communication), or have physical health challenges—it’s vital to include everything. The form and assessment need to reflect the whole picture of how your life is impacted, not just one condition.Sometimes people forget to mention secondary conditions or think they’re not relevant. But they absolutely can add to your total score and may be key to demonstrating your full needs.
But It’s Hard… Is It Worth It?
Yes, the system can feel overwhelming. The forms are long. The questions may feel repetitive. There may be medical assessments or even appeals. It’s frustrating, but many people do receive the support they’re entitled to, and help is available.
Consider:
- Asking a friend, family member, or support worker to help with the form
- Reaching out to Citizens Advice, Scope, or Turn2Us for guidance
- Keeping a diary of your day-to-day challenges for evidence
- Gathering letters or reports from health professionals, like SLTs or OTs
It’s okay to ask for help. You don’t have to do it alone.
Apraxia of speech
Communication tools
Speech can be supported with apps:
- Text-to-Speech Apps (e.g., Proloquo4Text, Predictable)
- Symbol-supported communication (for quick, familiar phrases)
- Voice banking or custom message storage
- Scripts and communication cards for specific settings (e.g., “I need extra time to speak”)