All the adults here have experience of living with apraxia of speech. Watch their videos and hear their insights. If you want yours to be added, just let me know
Mikey Akers is the founder of Mikey’s Wish Foundation, a registered charity that raises awareness of and supports people with speech, language and communication needs with an interest in Childhood Apraxia of Speech. Mikey was diagnosed with CAS when he was just 2 years old and has spent the last 10 years actively raising awareness of the diagnosis. He has travelled to America to speak at conferences, is an ‘Expert by Experience’ at Birmingham City University, travels England giving talks at conferences and schools. He has appeared in the documentary, Chris Kamara: Lost for Words. Mikey is working with a number of MPs to secure more funding for speech and language services after his petition was debated in Parliament earlier this year Facebook
Speech Apraxia UK were contacted by a parent wanting to share their journey of the process of discovering and navigating Childhood Apraxia of Speech (CAS) in one of her twin daughters. Initially misinterpreted as a delay or behavioral issue, the true diagnosis of CAS emerged after years of unanswered questions and persistent advocacy. The parent highlights how CAS is often misunderstood, even by professionals, and how its impact goes beyond speech, affecting sensory-motor integration and learning. She emphasizes the need for proper recognition, tailored support in education, and a broader understanding that communication is more than words. Her journey has inspired deeper study, culminating in a master’s thesis on CAS. Full story here https://acrobat.adobe.com/id/urn:aaid:sc:EU:78c60d08-e3a5-4560-916e-d19cfd5333ee
Dyspraxia or DCD (developmental coordination disorder) has had more than its fair share of causing issues in my daily life. What has impacted me the most regarding my dyspraxia, is the verbal element, sometimes specifically called verbal dyspraxia. Whether I am in a social or work environment the physical aspect of dyspraxia is not usually that visible to most and I can go a long time without ever feeling the need to mention that dyspraxia causes me issues with coordination. However, verbally my dyspraxia is very apparent.
The impact my speech has had on my mental health has grown significantly as I’ve gotten older. Surprisingly, kids didn’t react much to my speech impediment growing up, but adults have. For some reason, adults have decided that the way you speak is a direct link to your IQ capabilities and is an indicator as to whether or not they will respect you. Honestly, it’s the worst.
Dyspraxia is primarily a coordination based disability, which also means one's ability to coordinate vocal and oral muscles when producing sounds/words is affected. Where the brain is spending a lot of extra focus on this, it can result in one pausing often, skipping some words out, blending some words, or even forgetting what they were trying to say in the first place. Lots of ‘erm’ filler words are common for us.
My unfortunate experience with prejudice due to my speech issues has left me feeling isolated and disheartened. I encountered colleagues who dismissed my ideas or undervalued my contributions, assuming that my speech impediment somehow meant I had less to offer. Their lack of understanding further accentuated my fears and anxieties,
I firmly believe that fostering empathy and open dialogue is the cornerstone of eradicating prejudice in the workplace. By cultivating understanding about verbal dyspraxia and other communication disorders, we can replace misconception with compassion. It falls upon employers and colleagues to create an inclusive environment where each individual can thrive regardless of their unique challenges.
Embracing self-advocacy has been a game-changer. I began speaking up about my needs, requesting reasonable accommodations, and engaging in conversations about fostering a more inclusive work environment. I sought help from my human resources department and worked collaboratively with them to promote awareness programs and knowledge-sharing sessions in a way that didn't expose or single me out. It was a terrifying discussion at first, confronting your management on their lack of ability to control mistreatment within the team. However, I had the support of my HR team to help me verbalise the appropriate requests for positive change.
Education is a powerful tool to break down barriers and dispel misconceptions. My HR team organised and invited colleagues to listen to and hear from experts to educate them about verbal dyspraxia's impact and how to communicate with individuals experiencing speech difficulties effectively. These initiatives aimed to reshape perspectives, challenge biases, and inspire others to become allies in the fight against prejudice. You’d be surprised how quickly one's views can change once educated on a topic.
Though facing prejudice hasn't been easy, and has resulted in me missing out on multiple opportunities, I refuse to let it define me or limit my potential. Instead, I draw strength from my journey and use my voice to call out prejudice, so that others can see that I am more than my speech impediment. My tenacity and resilience have propelled me forward, reminding me of my worth and enabling me to achieve success, despite the challenges I have faced. However, this is not to say I don't still face ongoing prejudice. Some people are very proudly so, no amount of education and calm discussion will change their minds. That’s when HR needs to step in, remember to document everything to protect yourself. You deserve a workplace in which you feel respected, and those kinds of people have no right to be there.
The battle against workplace prejudice is ongoing, but sharing my story is a small step towards raising awareness and shedding light on the experiences of individuals with verbal dyspraxia. By embracing empathy, fostering dialogue, and advocating for inclusive environments, we can create workplaces where everyone's skills and contributions are valued, regardless of their unique challenges. Together, let's rewrite the narrative and break free from the chains of prejudice, empowering individuals with verbal dyspraxia to thrive professionally and reach their full potential.
Our organisation Speech Apraxia UK has loads of information to help you naviagate Speech Apraxia as an adult, whether that is to help with a diagnosis, therapy options, or simply a bit of advice... Check out our resource page.
Jaron Talks about growing up with apraxia and living with it today.
Living With Apraxia of Speech | BeautywithIsela
Isela describes what apraxia of speech is. She talks about how her childhood apraxia of speech continues to affect her as an adult.
My Journey with Apraxia of Speech
Speech has always been a source of both frustration and fascination for him. Diagnosed with childhood apraxia of speech, He spent almost a decade in therapy learning how to communicate. His channel shares his experiences growing up with a speech disorder, along with strategies, insights, and advice for anyone navigating similar challenges. He also dives into the science behind speech and apraxia in a way that’s clear and approachable
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Growing Up with Verbal Apraxia (CAS) - Q&A
Jordan Christian LeVan has a suite of videos and his own website, 'Flighting for my voice,' discussing the issues around apraxia of speech.
Joanne Bendel “If you are growing up with apraxia, or you grew up with apraxia, I want you to know that you are not alone. You see, I have it too, which means that we’ve probably faced similar challenges in life. Because we have a hard time putting sounds together, it makes communicating difficult. As you’re aware, not being well-understood means that we might have a few more obstacles in our path than other people do. But that’s what makes us unique. Woman with verbal apraxia: 'Don't ever give up'
Carly Fleischmann is an amazing person who doesn’t let nonverbal autism and apraxia of speech stop her. She uses technology to share her thoughts and ideas. Carly co-wrote the book “Carly’s Voice: Breaking Through Autism” and has her own YouTube show. Her story inspires neurodivergent kids all around the world.
My daughter was diagnosed with FOXP2 related speech and language disorder in 2017, age 9 years. That’s when the jigsaw pieces came together and we could finally begin to make sense of the variety of symptoms and challenges that this rare condition brings.
For us, the FOXP2 diagnosis explained three seemingly unrelated areas
This ‘de novo’ or new genetic change in our family – a seemingly random genetic occurrence – has had life changing consequences for us all, and particularly for my daughter. Early intensive physiotherapy intervention resulted in fantastic progress, although her speech remains the significant challenge. The only treatment for Childhood Apraxia of Speech (CAS), confirmed at nearly 6 years of age, is high intensity Speech and Language Therapy following principles of motor planning, with repetition, repetition, repetition. CAS is a lifelong neurological speech condition.
Makaton was used to try and help with communication, along with a communication book. Now that she’s at a specialist high school, she has access to an AAC (Augmentative Alternative Communication) device, but she would still prefer to use her voice to communicate. She’s now had over 13 years in speech therapy.
Speech is ‘automatic’ for so many of us, and yet it is SO complicated. Childhood Apraxia of Speech (CAS) is a ‘disorder of speech motor programming or planning that affects the production, sequencing, timing, and stress of sounds, syllables, and words. All individuals with CAS – whether caused by an alteration of FOXP2 or of an unknown cause – have difficulties in automatically and accurately sequencing speech sounds into syllables, syllables into words, and words into sentences with the correct prosody’. (1)
The mental health impact from all the years of not being understood is evident. In our case, CAS also affects literacy, with a whole word approach used to aid learning to read. Spelling is still a struggle.
Yet, despite the challenges to communicate, I have never met a more determined young person who will endeavour to find a way to get their message across. The hours spent practising speech, to strengthen the neural pathway and automate speech, the willingness to have a go. You’d never guess at the physical challenges overcome if you saw her today.
Receiving a genetic diagnosis has given us the opportunity to connect with a wonderful team from The Murdoch Children’s Research Institute and University of Melbourne, which led to some significant speech progress for my daughter when combined Rapid Syllable Transition Treatment (ReST) and The Nuffield Dyspraxia programmes (NDP3) were trialled.
Growing up with Verbal Apraxia - Q&A (Jordan and Heather)
Heather and Jordan discuss growing up with childhood apraxia of speech and managing as adults
For the first six years of Ronda Rouey’s life, she struggled to form intelligible sentences. While at the time she was not diagnosed with Childhood Apraxia of Speech, as the condition was extremely rare and not well understood, Rousey did take speech therapy lessons as a child.
She told ABC News about it in 2015, saying, “At first I was tested for deafness. They thought maybe my pronunciation was off because I was hearing things differently. But it was really I had all these words perfectly arranged in my head, it’s just when they tried to come out of my mouth they sounded different. It was kind of like there was a divide between my brain and my mouth."
Ronda Rousey and her family believe that it may have been the fact that Rouey was born with her umbilical cord wrapped around her neck that caused the disorder. It’s ironic that someone who became known for choking out opponents was almost choked out in birth. It’s almost as if it was fate. Ronda was born a fighter, so she became one professionally as well.(Thesportstar.com, 2025) Ronda Rousey wants Becky Lynch at WrestleMania: Raw, Feb. 25, 2019
Gina was diagnosed with acquired apraxia of speech after a cerebral vascular accident (small stroke) in October of 2015. She wanted to find others who have apraxia but really, couldn't find any good examples of adults like her. She decided she couldn't be the only one out there, so she posted videos of her and her progress. Click on the link to watch them.
Deonna Keiser is an artist who is living with the impacts of speech aphasia and apraxia as a result of a stroke. While Deonna is able to understand all spoken language, she sometimes has trouble formulating the words to speak. With the help of her dear friend Lisa Naser, and through her art, Deonna is able to communicate her day-to-day and emotional experiences. When Art Speaks: Living after Stroke with Speech Aphasia and Apraxia - YouTube
Chris Kamara Bravely Opens Up On His Battle With Apraxia | This Morning - YouTube
He’s known for his famous catchphrase ‘Unbelievable Jeff!’ during his football commentary each weekend, but in 2020 Chris Kamara found himself struggling with his speech. He was later diagnosed with a rare condition called Apraxia of Speech (AOS) which is the subject of his new documentary ‘Lost For Words’. Chris joined the Britiish channel ITV alongside his close friend Ben Shephard to share his story. . Watch his film Chris Kamara: Lost for Words - ITVX
Watch Tim's story when he was given 10-15 years to live Losing the Ability to Speak | Tim Schut | TEDxSiouxFalls
Read his book Amazon.com: American Boy: The Story of Tim Schut eBook : Schut, Tim: Kindle Store
Learn about his pioneering journey Home - SPEECHLESS with Tim Schut
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