All the adults here have experience of living with apraxia of speech. Watch their videos and hear their insights. If you want yours to be added, just let me know
Mikey Akers is the founder of Mikey’s Wish Foundation, a registered charity that raises awareness of and supports people with speech, language and communication needs with an interest in Childhood Apraxia of Speech. Mikey was diagnosed with CAS when he was just 2 years old and has spent the last 10 years actively raising awareness of the diagnosis. He has travelled to America to speak at conferences, is an ‘Expert by Experience’ at Birmingham City University, travels England giving talks at conferences and schools. He has appeared in the documentary, Chris Kamara: Lost for Words. Mikey is working with a number of MPs to secure more funding for speech and language services after his petition was debated in Parliament earlier this year
Speech Apraxia UK were contacted by a parent wanting to share their journey of the process of discovering and navigating Childhood Apraxia of Speech (CAS) in one of her twin daughters. Initially misinterpreted as a delay or behavioral issue, the true diagnosis of CAS emerged after years of unanswered questions and persistent advocacy. The parent highlights how CAS is often misunderstood, even by professionals, and how its impact goes beyond speech, affecting sensory-motor integration and learning. She emphasizes the need for proper recognition, tailored support in education, and a broader understanding that communication is more than words. Her journey has inspired deeper study, culminating in a master’s thesis on CAS. Full story here https://acrobat.adobe.com/id/urn:aaid:sc:EU:78c60d08-e3a5-4560-916e-d19cfd5333ee
Jaron Talks about growing up with apraxia and living with it today.
Living With Apraxia of Speech | BeautywithIsela
Isela describes what apraxia of speech is. She talks about how her childhood apraxia of speech continues to affect her as an adult.
My Journey with Apraxia of Speech
Speech has always been a source of both frustration and fascination for him. Diagnosed with childhood apraxia of speech, He spent almost a decade in therapy learning how to communicate. His channel shares his experiences growing up with a speech disorder, along with strategies, insights, and advice for anyone navigating similar challenges. He also dives into the science behind speech and apraxia in a way that’s clear and approachable
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Growing Up with Verbal Apraxia (CAS) - Q&A
Jordan Christian LeVan has a suite of videos and his own website, 'Flighting for my voice,' discussing the issues around apraxia of speech.
Joanne Bendel “If you are growing up with apraxia, or you grew up with apraxia, I want you to know that you are not alone. You see, I have it too, which means that we’ve probably faced similar challenges in life. Because we have a hard time putting sounds together, it makes communicating difficult. As you’re aware, not being well-understood means that we might have a few more obstacles in our path than other people do. But that’s what makes us unique. Woman with verbal apraxia: 'Don't ever give up'
Carly Fleischmann is an amazing person who doesn’t let nonverbal autism and apraxia of speech stop her. She uses technology to share her thoughts and ideas. Carly co-wrote the book “Carly’s Voice: Breaking Through Autism” and has her own YouTube show. Her story inspires neurodivergent kids all around the world.
Growing up with Verbal Apraxia - Q&A (Jordan and Heather)
Heather and Jordan discuss growing up with childhood apraxia of speech and managing as adults
For the first six years of Ronda Rouey’s life, she struggled to form intelligible sentences. While at the time she was not diagnosed with Childhood Apraxia of Speech, as the condition was extremely rare and not well understood, Rousey did take speech therapy lessons as a child.
She told ABC News about it in 2015, saying, “At first I was tested for deafness. They thought maybe my pronunciation was off because I was hearing things differently. But it was really I had all these words perfectly arranged in my head, it’s just when they tried to come out of my mouth they sounded different. It was kind of like there was a divide between my brain and my mouth."
Ronda Rousey and her family believe that it may have been the fact that Rouey was born with her umbilical cord wrapped around her neck that caused the disorder. It’s ironic that someone who became known for choking out opponents was almost choked out in birth. It’s almost as if it was fate. Ronda was born a fighter, so she became one professionally as well.(Thesportstar.com, 2025) Ronda Rousey wants Becky Lynch at WrestleMania: Raw, Feb. 25, 2019
Gina was diagnosed with it after a cerebral vascular accident (small stroke) in October of 2015. She wanted to find others who have apraxia but really, couldn't find any good examples of adults like her. She decided she couldn't be the only one out there, so she posted videos of me and my progress. Click on the link to watch them.
Deonna Keiser is an artist who is living with the impacts of speech aphasia and apraxia as a result of a stroke. While Deonna is able to understand all spoken language, she sometimes has trouble formulating the words to speak. With the help of her dear friend Lisa Naser, and through her art, Deonna is able to communicate her day-to-day and emotional experiences. When Art Speaks: Living after Stroke with Speech Aphasia and Apraxia - YouTube
Chris Kamara Bravely Opens Up On His Battle With Apraxia | This Morning - YouTube
He’s known for his famous catchphrase ‘Unbelievable Jeff!’ during his football commentary each weekend, but in 2020 Chris Kamara found himself struggling with his speech. He was later diagnosed with a rare condition called Apraxia of Speech (AOS) which is the subject of his new documentary ‘Lost For Words’. Chris joins us today alongside his close friend Ben Shephard to share his story. . Watch his film Chris Kamara: Lost for Words - ITVX
Watch his story when he was given 10-15 years to live Losing the Ability to Speak | Tim Schut | TEDxSiouxFalls
Read his book Amazon.com: American Boy: The Story of Tim Schut eBook : Schut, Tim: Kindle Store
Learn about his pioneering journey Home - SPEECHLESS with Tim Schut
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